Program areas at CURE
Since its inception in 1998, CURE Epilepsy has raised more than 99 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 285 grants in 18 countries around the world.
CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness.
Who funds CURE Epilepsy (CURE)
Grants from foundations and other nonprofits
Personnel at CURE
| Name | Title | Compensation | Date of data |
|---|
| Beth Lewin Dean, MPA, MBA | Chief Executive Officer | $314,565 | 2025-03-12 |
| John Anderluh, MMS | Chief Financial Officer | $116,125 | 2025-03-12 |
| Laura S. Lubbers, PhD | Chief Scientific Officer | $316,541 | 2025-03-12 |
| Dana Vielmetti | Senior Director , Marketing and Communications | $146,627 | 2025-03-12 |
| Debby Hecht | Senior Director , Market Coms / Senior Director , Market and Coms / Senior Director , Marketing and Comm / Director , Marketing and Communications | $162,707 | 2022-12-31 |
| ...and 8 more key personnel |
Financials for CURE
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $6,403,752 | $5,937,146 | 7.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $245,340 | $140,351 | 74.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $110,562 | $706,426 | -84.3% |
| Net income from fundraising events | $-576,491 | $-552,547 | -4.3% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $6,183,163 | $6,231,376 | -0.8% |
Organizations like CURE
| Organization | Type | Location | Revenue |
|---|
| Epilepsy Foundation | 501(c)(3) | Bowie, MD | $17,841,214 |
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
| Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $14,785,235 |
| Tourette Association of America | 501(c)(3) | Bayside, NY | $5,048,195 |
| I Am Als | 501(c)(3) | Washington, DC | $2,326,778 |
| Miles for Migraine | 501(c)(3) | Jericho, VT | $1,647,652 |
| FSHD Society | 501(c)(3) | Randolph, MA | $4,455,414 |
| National Eczema Association | 501(c)(3) | Novato, CA | $7,212,126 |
| National Scleroderma Foundation | 501(c)(3) | Danvers, MA | $4,941,722 |
| American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $23,361,566 |
Data update history
February 28, 2025
Used new vendors
Identified 2 new vendors, including , and
February 26, 2025
Updated personnel
Identified 4 new personnel
January 13, 2025
Received grants
Identified 13 new grant, including a grant for $97,527 from BAND Foundation July 17, 2024
Received grants
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
- Address
- 420 N Wabash Ave Ste 650
- Chicago, IL 60611
- Metro area
- Chicago-Naperville-Elgin, IL-IN-WI
- County
- Cook County, IL
- Website URL
- cureepilepsy.org/Â
- Phone
- (312) 255-1801
- Facebook page
- CUREforEpilepsyÂ
- Twitter profile
- @cureepilepsyÂ
IRS details
- EIN
- 36-4253176
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1998
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0137196
- FTB Entity ID
- 3058083
- AB 488 data last updated ("as-of") date
- 2025-03-19
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