EIN 82-5476655

CMT Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
6
State
Year formed
2018
Most recent tax filings
2023-06-01
Description
The CMT Research Foundation funds research to find treatments and cures for Charcot-Marie-Tooth (CMT). Its mission is to exclusively focus on funding research that leads to the discovery, development, and clinical application of these treatments and cures. The foundation supports efficient research aimed at drug delivery by creating strategic alliances with academic and industry stakeholders.
Total revenues
$3,526,505
2023
Total expenses
$3,602,656
2023
Total assets
$4,029,470
2023
Num. employees
6
2023

Program areas at CMT Research Foundation

Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders.

Grants made by CMT Research Foundation

GranteeGrant descriptionAmount
Vanderbilt UniversityCollaborative Research Agreement$244,323
American Pharmacists Association Academy of Student Pharmacists / University of Illinois at ChicagoCollaborative Research Agreement$32,385

Who funds CMT Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Grandview Steers FoundationGeneral Support$250,000
Schwab Charitable FundHealth$141,345
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$117,250
...and 24 more grants received totalling $1,223,593

Personnel at CMT Research Foundation

NameTitleCompensation
Cleary SimpsonChief Executive Officer / Member$191,665
Erich FasnachtChief Operating Officer$230,000
Keith FargoChief Scientific Officer$200,458
Patrick LivneyFounder and Chairman$0
Adam KauffmanTreasurer / Finance Chair$0
...and 3 more key personnel

Financials for CMT Research Foundation

RevenuesFYE 06/2023
Total grants, contributions, etc.$3,401,534
Program services$48,609
Investment income and dividends$76,362
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,526,505

Form 990s for CMT Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-062024-05-15990View PDF
2022-062023-08-09990View PDF
2021-062022-09-01990View PDF
2021-062022-05-23990View PDF
2020-122021-05-25990View PDF
...and 2 more Form 990s
Data update history
August 9, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 7, 2024
Updated personnel
Identified 3 new personnel
July 14, 2024
Received grants
Identified 3 new grant, including a grant for $15,763 from American Online Giving Foundation
May 18, 2024
Received grants
Identified 13 new grant, including a grant for $250,000 from Grandview Steers Foundation
December 24, 2023
Received grants
Identified 2 new grant, including a grant for $25,000 from Community Foundation of Middle Tennessee (CFMT)
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
4062 Peachtree Rd A209
Atlanta, GA 30319
Metro area
Atlanta-Sandy Springs-Alpharetta, GA
County
DeKalb County, GA
Website URL
cmtrf.org/ 
Phone
(404) 806-7180
IRS details
EIN
82-5476655
Fiscal year end
June
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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