EIN 82-5476655

CMT Research Foundation

Name: CMT Research Foundation financials for 2023
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Atlanta

State

Georgia

Year formed

2018

Most recent tax filings

2023-06-01

NTEE code, primary

H90: Medical Specialty Research

Description

The CMT Research Foundation funds research to find treatments and cures for Charcot-Marie-Tooth (CMT). Its mission is to exclusively focus on funding research that leads to the discovery, development, and clinical application of these treatments and cures. The foundation supports efficient research aimed at drug delivery by creating strategic alliances with academic and industry stakeholders.

Total revenues

$3,526,505

2023

Total expenses

$3,602,656

2023

Total assets

$4,029,470

2023

Num. employees

2023

Program areas at CMT Research Foundation

Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders.

Grants made by CMT Research Foundation

Grantee	Grant description	Grant year	Amount
Vanderbilt University	Collaborative Research Agreement	2023-06	$244,323
American Pharmacists Association Academy of Student Pharmacists / University of Illinois at Chicago	Collaborative Research Agreement	2023-06	$32,385

Who funds CMT Research Foundation

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Skylight Charitable Trust	2023-12	Allan Jackson Challenge Grant	$382,983
Grandview Steers Foundation	2022-12	General Support	$250,000
Schwab Charitable Fund	2023-06	Health	$141,345
...and 22 more grants received totalling $1,339,559

Personnel at CMT Research Foundation

Name	Title	Compensation	Date of data
Cleary Simpson	Chief Executive Officer / Member	$191,665	2024-10-24
Laura M. MacNeill	Chief Executive Officer		2024-10-24
Erich M. Fasnacht	Chief Operations Officer	$230,000	2024-10-24
Keith Fargo	Chief Scientific Officer	$200,458	2023-06-30
Anna Combes	Vice President of Philanthropy		2024-10-24
...and 9 more key personnel

Financials for CMT Research Foundation

Revenues	FYE 06/2023	FYE 06/2022	% Change
Total grants, contributions, etc.	$3,401,534	$4,349,158	-21.8%
Program services	$48,609	$0	999%
Investment income and dividends	$76,362	$3,127	2342%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$0	$0	-
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$3,526,505	$4,352,285	-19%

Form 990s for CMT Research Foundation

Fiscal year ending	Date received by IRS	Form	PDF link
2023-06	2024-05-15	990	View PDF
2022-06	2023-08-09	990	View PDF
2021-06	2022-09-01	990	View PDF
2021-06	2022-05-23	990	View PDF
2020-12	2021-05-25	990	View PDF
...and 2 more Form 990s

Organizations like CMT Research Foundation

Organization	Type	Location	Revenue
Lions World Vision Institute Foundation	501(c)(3)	Tampa, FL	$1,653,599
Progeria Research Foundation (PRF)	501(c)(3)	Peabody, MA	$2,231,500
Global Lyme Alliance	501(c)(3)	Old Greenwich, CT	$3,221,015
Neurosurgery Research and Education Foundation (NREF)	501(c)(3)	Rolling Meadows, IL	$1,991,819
Children's Health Foundation / Children's Medical Research Inc	501(c)(3)	Oklahoma City, OK	$5,543,428
Georgia Center for Oncology Research and Education	501(c)(3)	Atlanta, GA	$3,851,499
The Arvo Foundation for Eye Research	501(c)(3)	Rockville, MD	$997,892
Scleroderma Research Foundation (SRF)	501(c)(3)	San Francisco, CA	$8,418,038
Pediatric Dermatology Research Alliance	501(c)(3)	Portland, OR	$1,638,645
Alzheimer's Research Foundationfisher Center	501(c)(3)	New York, NY	$10,469,067

Data update history

October 24, 2024

Updated personnel

Identified 6 new personnel

September 21, 2024

Received grants

Identified 1 new grant, including a grant for $15,000 from The Goode Family Charitable Foundation

August 9, 2024

Posted financials

Added Form 990 for fiscal year 2023

August 7, 2024

Updated personnel

Identified 3 new personnel

July 14, 2024

Received grants

Identified 3 new grant, including a grant for $15,763 from American Online Giving Foundation

Nonprofit Types

Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities

Issues

Health

Characteristics

Provides grantsConducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations

General information

Address: 4062 Peachtree Rd A209; Atlanta, GA 30319
Metro area: Atlanta-Sandy Springs-Alpharetta, GA
County: DeKalb County, GA
Website URL: cmtrf.org/
Phone: (404) 806-7180

IRS details

EIN: 82-5476655
Fiscal year end: June
Taxreturn type: Form 990
Year formed: 2018
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: H90: Medical Specialty Research
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

California AB-488 details

AB 488 status: May Operate or Solicit for Charitable Purposes
Charity Registration status: Current - Awaiting Reporting
FTB status revoked: Not revoked
AG Registration Number: CT0274740
FTB Entity ID: None yet
AB 488 data last updated ("as-of") date: 2024-12-31

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CMT Research Foundation

Program areas at CMT Research Foundation

Grants made by CMT Research Foundation

Who funds CMT Research Foundation

Personnel at CMT Research Foundation

Financials for CMT Research Foundation

Form 990s for CMT Research Foundation

Organizations like CMT Research Foundation

Nonprofits

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