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EIN 06-1057497

Cornelia de Lange Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
13
City
Avon
State
Connecticut
Year formed
1981
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Cornelia de Lange Syndrome Foundation is a family support organization that strives to ensure early and accurate diagnosis of CdLS, promotes research into the causes and manifestations of the syndrome, and helps people with a diagnosis of CdLS and others with similar characteristics make informed decisions. The foundation provides professional education outreach and awareness, as well as public information and education.
Total revenues
$945,606
2023
Total expenses
$993,059
2023
Total assets
$3,267,499
2023
Num. employees
13
2023

Program areas at Cornelia de Lange Syndrome Foundation

Family support programs
Professional education outreach & awareness
Public information & education

Who funds Cornelia de Lange Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Jewish Community Federation and Endowment FundHealth$251,900
American Online Giving FoundationGeneral Support$31,264
Schwab Charitable FundHealth$17,528
...and 9 more grants received

Personnel at Cornelia de Lange Syndrome Foundation

NameTitleCompensation
Bonnie RoysterExecutive Director
Maureen LordFinance Director
Gabrielle Nadeau, MACommunications Director
Antonie Kline, M.D.Medical Director$13,500
Whitney Rinaldi, B.S.W.Program Director , Family Services
...and 11 more key personnel

Financials for Cornelia de Lange Syndrome Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$778,290
Program services$0
Investment income and dividends$49,050
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$17,772
Net income from fundraising events$100,494
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$945,606

Form 990s for Cornelia de Lange Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-30990View PDF
2022-122024-09-23990View PDF
2022-122023-11-15990View PDF
2021-122022-10-19990View PDF
2020-122021-09-01990View PDF
...and 10 more Form 990s
Data update history
November 3, 2024
Updated personnel
Identified 6 new personnel
October 20, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 21, 2024
Received grants
Identified 1 new grant, including a grant for $4,000 from Good Old Lew Foundation
July 13, 2024
Received grants
Identified 4 new grant, including a grant for $251,900 from Jewish Community Federation and Endowment Fund
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
30 Tower LN 400
Avon, CT 06001
Metro area
Hartford-East Hartford-Middletown, CT
County
Capitol Planning Region, CT
Website URL
cdlsusa.org/ 
Phone
(860) 676-8166
IRS details
EIN
06-1057497
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1981
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
079764
FTB Entity ID
1637882
AB 488 data last updated ("as-of") date
2024-12-18
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