EIN 83-4541448

CTNNB1 Connect and Cure

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2019
Most recent tax filings
2023-12-01
Description
Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families. The organizaiton provides funding and grants for treatment research, development and awareness for CTNNB1 syndrome. Research grant to dr michele jacob at tufts university. Researching cures and treatments for CTNNB1 syndrome. Advancing Research Treatment for CTNNB1 Syndrome. Advanced cures and treatments for CTNNB1.
Also known as...
Advancing CTNNB1 Cures and Treatments
Total revenues
$313,878
2023
20192020202120222023$0$0.2m$0.4m
Total expenses
$194,310
2023
20192020202120222023$0$0.1m$0.2m
Total assets
$316,244
2023
20192020202120222023$0$0.2m$0.4m
Num. employees
0
2023
2019202020212022202300.51

Program areas at CTNNB1 Connect and Cure

The organizations purpose is finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families. This was accomplished by having an in person research conference, in conjunction with having doctors in performing a natural history study on the children. The organization also provides grants for research to find a cure.

Grants made by CTNNB1 Connect and Cure

GranteeGrant descriptionAmount
Tufts UniversityResearch Treatment Study$90,000
Boston Children's HospitalCTNNB1 Natural History Study$65,000

Who funds CTNNB1 Connect and Cure

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$49,029
Anne Anastasi Charitable FoundationGeneral & Unrestricted$10,000
The Dorfman and Kaish Family FoundationCharitable Contribution$2,500
...and 3 more grants received

Personnel at CTNNB1 Connect and Cure

NameTitleCompensation
Sean CochranChief Financial Officer$0
Ashley SwiftChief Communications Officer$0
Ngano Tony KingChief Research Officer$0
Bruno RamalhoDirector of Technology$0
Lindsay StevensDirector of Fundraising$0
...and 5 more key personnel

Financials for CTNNB1 Connect and Cure

RevenuesFYE 12/2023
Total grants, contributions, etc.$314,676
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$-798
Miscellaneous revenues$0
Total revenues$313,878

Form 990s for CTNNB1 Connect and Cure

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-07990View PDF
2022-122023-11-15990EZView PDF
2021-122022-03-28990EZView PDF
2020-122021-04-26990EZView PDF
2019-122020-09-16990EZView PDF
Data update history
September 22, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 21, 2024
Updated personnel
Identified 4 new personnel
August 26, 2024
Received grants
Identified 2 new grant, including a grant for $10,000 from Anne Anastasi Charitable Foundation
December 27, 2023
Posted financials
Added Form 990EZ for fiscal year 2022
December 26, 2023
Updated personnel
Identified 9 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchNational levelTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
8 Loantaka LN North
Morristown, NJ 07960
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Morris County, NJ
Website URL
curectnnb1.org/ 
Phone
(973) 978-5585
IRS details
EIN
83-4541448
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2019
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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