EIN 87-2041980

Cure KCNH1 Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2021
Most recent tax filings
2023-12-01
Description
The Cure KCNH1 Foundation advocates for patients and seeks to improve their lives by promoting awareness of KCNH1 genetic disorders, advancing research, and searching for better treatment options and a cure. In just over a year, the foundation has assembled a scientific team, collaborated with academic partners to develop research tools, funded pivotal research projects, and hosted the first-ever KCNH1 conference.
Total revenues
$52,188
2023
Total expenses
$76,854
2023
Total assets
$114,174
2023
Num. employees
0
2022

Program areas at Cure KCNH1 Foundation

In a little over a year since we created the foundation we have gathered a scientific team developed invaluable research tools in collaboration with our academic partners funded pivotal research projects and hosted the first-ever KCNH1 conference. Our foundation has funded the design manufacture and screening of a batch of antisense oligonucleotides a type of genetic therapy as well as a repurposed drug screen which identifies existing approved medications that could be repurposed to help correct the potassium-channel overactivity caused by KCNH1 mutations.

Who funds Cure KCNH1 Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Americas FoundationPhilanthropic/educational Purpose$75,000
American Online Giving FoundationGeneral Support$6,270
AmazonSmile FoundationGeneral Support$209

Personnel at Cure KCNH1 Foundation

NameTitleCompensation
Michaelle JinnettePresident$0
Kevin WittDirector$0
Joshua YelseyTreasurer$0
James PearsonSecretary$0
Amy FinniganDirector$0

Financials for Cure KCNH1 Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$50,734
Program services$0
Membership dues$0
Investment income and dividends$1,454
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$52,188

Form 990s for Cure KCNH1 Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-06-17990EZView PDF
2022-122023-11-15990View PDF
Data update history
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $6,270 from American Online Giving Foundation
January 8, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 8, 2024
Updated personnel
Identified 4 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $75,000 from Americas Foundation
June 2, 2022
Posted financials
Added Form 990N for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
1928 Wandering Rd
Encinitas, CA 92024
Metro area
San Diego-Chula Vista-Carlsbad, CA
County
San Diego County, CA
Website URL
curekcnh1.org/ 
IRS details
EIN
87-2041980
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
2021
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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