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EIN 82-2473513

Cure Rare Disease

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Woodbridge
State
Connecticut
Year formed
2018
Most recent tax filings
2023-07-01
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
Description
Cure Rare Disease enables and finances the development of life-saving genetic medicines for ultra-rare patient populations previously deemed too rare to treat. Their unique ecosystem facilitates collaboration between world-renowned researchers to advance the development of ultra-rare disease therapeutics.
Also known as...
Terrys Foundation for Muscular Dystrophy
Total revenues
$2,300,944
2023
Total expenses
$1,957,670
2023
Total assets
$3,277,567
2023
Num. employees
5
2023

Program areas at Cure Rare Disease

To advance the development of ultra-rare Disease therapeutics.

Who funds Cure Rare Disease

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$72,773
America's Charities (AC)General Support$59,529
Muscular Dystrophy AssociationAdvocacy$30,000
...and 20 more grants received totalling $336,857

Personnel at Cure Rare Disease

NameTitleCompensation
Richard HorganExecutive Director$74,845
Sarah KriegerDirector of Community Engagement
Melissa Hunter EnsorChairwoman$0

Financials for Cure Rare Disease

RevenuesFYE 07/2023
Total grants, contributions, etc.$2,029,627
Program services$0
Investment income and dividends$9,267
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$13,920
Net gain from sale of non-inventory assets$0
Net income from fundraising events$246,483
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$1,647
Total revenues$2,300,944

Form 990s for Cure Rare Disease

Fiscal year endingDate received by IRSFormPDF link
2023-072024-05-13990View PDF
2022-072023-08-07990View PDF
2021-072022-05-25990View PDF
2020-072021-06-15990View PDF
2019-072021-03-19990View PDF
...and 1 more Form 990
Data update history
July 11, 2024
Used new vendors
Identified 1 new vendor, including
May 18, 2024
Received grants
Identified 12 new grant, including a grant for $59,529 from America's Charities (AC)
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $14,633 from The Blackbaud Giving Fund
October 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 9, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsReceives government fundingFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
4 Research Dr
Woodbridge, CT 06525
Metro area
New Haven-Milford, CT
County
09170
Website URL
cureraredisease.org/ 
Phone
(607) 215-6401
IRS details
EIN
82-2473513
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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