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EIN 46-2699066

The Cute Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Troy
State
New York
Year formed
2014
Most recent tax filings
2023-12-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
The Cute Syndrome Foundation is located in Troy, NY and co-funded a grant with SCNBA Italia to the Danish Epilepsy Center to support their “Patient Registry and Natural Disease Evolution.
Total revenues
$439,635
2023
Total expenses
$421,951
2023
Total assets
$307,586
2023
Num. employees
0
2023

Program areas at The Cute Syndrome Foundation

Support for families affected by scn8a
Support for scientists researching scn8a and raising public awareness of this gene muutation

Who funds The Cute Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$15,400
Global GenesMental Health Grant$14,973
Mckesson FoundationCharitable$1,316

Personnel at The Cute Syndrome Foundation

NameTitleCompensation
Hillary SavoiePresident$0
Kacie CraigDirector$0
Philip GitlenBoard Chair$0
Ryan PitinoTreasurer$0
Alan AronsonDirector$0
...and 1 more key personnel

Financials for The Cute Syndrome Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$438,048
Program services$0
Investment income and dividends$1,587
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$439,635

Form 990s for The Cute Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-05-16990View PDF
2020-122022-06-07990EZView PDF
2019-122021-05-19990EZView PDF
2018-122019-08-27990EZView PDF
Data update history
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $1,316 from Mckesson Foundation
December 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 13, 2023
Received grants
Identified 1 new grant, including a grant for $8,550 from American Online Giving Foundation
May 25, 2023
Updated personnel
Identified 5 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedState / local levelTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
1 Meadowbrook LN
Troy, NY 12180
Metro area
Albany-Schenectady-Troy, NY
Website URL
thecutesyndrome.com/ 
Phone
(417) 848-6203
IRS details
EIN
46-2699066
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Not revoked
AG Registration Number
CT0267263
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-01-15
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