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EIN 13-1930701

Cystic Fibrosis Foundation

IRS 501(c) type
501(c)(3)
Num. employees
890
City
Bethesda
State
Maryland
Year formed
1955
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Cystic Fibrosis Foundation drives research, funds innovative therapies, advocates for patients, and supports the CF community to improve lives affected by cystic fibrosis.
Total revenues
$248,630,352
2022
Total expenses
$396,664,114
2022
Total assets
$4,735,058,992
2022
Num. employees
890
2022

Grants made by Cystic Fibrosis Foundation

GranteeGrant descriptionAmount
Seattle Children's HospitalClinical Research Center$7,610,499
Seattle Children's HospitalClinical Research Study$6,399,823
HealthWell FoundationPatient Assistance$5,600,000
...and 468 more grants made totalling $139,694,002

Who funds Cystic Fibrosis Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$2,346,663
American Online Giving FoundationGeneral Support$1,306,440
Schwab Charitable FundHealth$712,147
...and 229 more grants received totalling $10,214,747

Personnel at Cystic Fibrosis Foundation

NameTitleCompensation
Michael P. Boyle, MDPresident and Chief Executive Officer$950,256
Irena BarisicExecutive Vice President and Chief Operating and Financial Officer$557,940
Marc S GinskyFormer Chief Operating Officer$1,245,811
Jack Mahler, MDChief Investment Officer$2,463,847
Vera H TwiggFormer Executive Vice President , Chief Financial Officer$616,739
...and 19 more key personnel

Financials for Cystic Fibrosis Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$97,948,958
Program services$2,555,705
Investment income and dividends$63,753,516
Tax-exempt bond proceeds$0
Royalty revenue$14,016,961
Net rental income$0
Net gain from sale of non-inventory assets$64,313,171
Net income from fundraising events$0
Net income from gaming activities$39,056
Net income from sales of inventory$0
Miscellaneous revenues$6,002,985
Total revenues$248,630,352

Form 990s for Cystic Fibrosis Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-11-10990View PDF
2019-122021-02-22990View PDF
2018-122019-12-05990View PDF
...and 9 more Form 990s

Organizations like Cystic Fibrosis Foundation

OrganizationLocationRevenue
The Leukemia and Lymphoma SocietyincRye Brook, NY$378,338,490
National Organization for Rare Disorders (NORD)Quincy, MA$66,397,453
National Multiple Sclerosis SocietyNew York, NY$149,451,246
Susan G KomenDallas, TX$107,597,705
American Heart Association (AHA)Dallas, TX$925,828,648
American Cancer Society (ACS)Atlanta, GA$656,838,115
Canadian Cancer SocietyCanada, $123,004,632
American Lung AssociationChicago, IL$108,589,062
Juvenile Diabetes Research Foundation (JDRF)New York, NY$223,798,085
Pancreatic Cancer Action Network (PCAN)Manhattan Beach, CA$77,560,417
Data update history
November 3, 2024
Updated personnel
Identified 6 new personnel
October 24, 2024
Received grants
Identified 27 new grant, including a grant for $329,984 from The Blackbaud Giving Fund
August 10, 2024
Received grants
Identified 53 new grant, including a grant for $128,000 from The Boston Foundation (TBF)
May 19, 2024
Received grants
Identified 74 new grant, including a grant for $1,306,440 from American Online Giving Foundation
December 26, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
4550 Montgomery Ave 1100n
Bethesda, MD 20814
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Montgomery County, MD
Website URL
cff.org/ 
Phone
(301) 951-4422
Facebook page
cysticfibrosisfoundation 
Twitter profile
@cf_foundation 
IRS details
EIN
13-1930701
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1955
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
038740
FTB Entity ID
0407731
AB 488 data last updated ("as-of") date
2024-11-06
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