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EIN 13-1930701

Cystic Fibrosis Foundation

IRS 501(c) type
501(c)(3)
Num. employees
847
City
Bethesda
State
Maryland
Year formed
1955
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Cystic Fibrosis Foundation drives research, funds innovative therapies, advocates for patients, and supports the CF community to improve lives affected by cystic fibrosis.
Total revenues
$292,016,280
2023
Total expenses
$443,404,599
2023
Total assets
$4,885,921,122
2023
Num. employees
847
2023

Grants made by Cystic Fibrosis Foundation

GranteeGrant descriptionAmount
Seattle Children's HospitalClinical Research Center$7,999,704
Seattle Children's HospitalClinical Research Study$7,928,169
Jaeb Center for Health Research (JCHR)Clinical Research Study$7,020,681
...and 508 more grants made totalling $155,032,280

Who funds Cystic Fibrosis Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$2,346,663
American Online Giving FoundationGeneral Support$1,306,440
Schwab Charitable FundHealth$712,147
...and 250 more grants received totalling $10,897,784

Personnel at Cystic Fibrosis Foundation

NameTitleCompensation
Michael P BoylePresident and Chief Executive Officer / SR.VP , Therapeutics Development / Senior Vice President of Therapeutics Development$1,372,546
Irena BarisicExecutive Vice President , Chief Operating Officer , and Chief Financial Officer$692,433
John C MahlerChief Investment Officer$2,747,771
Marybeth McMahonChief of Staff / Vice President of Communications$552,564
Mary DwightSenior Vice President and Chief Policy and Advocacy Officer / Vice President of Clinical Research / Senior Vice President of Policy and Advocacy / Senior Vice President for Policy and Patient Assistance Programs / Senior Vice President Policy and Patient Assist. / Senior Vice President for Policy and CF Community Affairs / Senior Vice President Policy and Comm Affairs$543,012
...and 10 more key personnel

Financials for Cystic Fibrosis Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$86,607,373
Program services$3,437,695
Investment income and dividends$76,349,644
Tax-exempt bond proceeds$0
Royalty revenue$12,545,463
Net rental income$0
Net gain from sale of non-inventory assets$102,799,966
Net income from fundraising events$0
Net income from gaming activities$10,361
Net income from sales of inventory$0
Miscellaneous revenues$10,265,778
Total revenues$292,016,280

Form 990s for Cystic Fibrosis Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-12990View PDF
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-11-10990View PDF
2019-122021-02-22990View PDF
...and 10 more Form 990s

Organizations like Cystic Fibrosis Foundation

OrganizationLocationRevenue
The Leukemia and Lymphoma SocietyWashington, DC$368,242,059
National Multiple Sclerosis SocietyNew York, NY$149,451,246
American Heart Association (AHA)Dallas, TX$925,828,648
Susan G KomenDallas, TX$107,597,705
ALS Association (ALS)Arlington, VA$126,450,238
Canadian Cancer SocietyCanada, $125,466,047
American Lung AssociationChicago, IL$108,589,062
American Cancer Society (ACS)Atlanta, GA$656,838,115
Juvenile Diabetes Research Foundation (JDRF)New York, NY$223,798,085
Constructive Partnerships Unlimited (CP of NYS)New York, NY$235,403,025
Data update history
February 28, 2025
Updated personnel
Identified 3 new personnel
January 22, 2025
Updated personnel
Identified 1 new personnel
January 18, 2025
Received grants
Identified 45 new grant, including a grant for $166,869 from National Christian Foundation / Natl Christian Charitable FDN Inc
January 8, 2025
Used new vendors
Identified 2 new vendors, including , and
January 5, 2025
Posted financials
Added Form 990 for fiscal year 2023
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
4550 Montgomery Ave 1100n
Bethesda, MD 20814
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Montgomery County, MD
Website URL
cff.org/ 
Phone
(301) 951-4422
Facebook page
cysticfibrosisfoundation 
Twitter profile
@cf_foundation 
IRS details
EIN
13-1930701
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1955
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
038740
FTB Entity ID
0407731
AB 488 data last updated ("as-of") date
2025-03-19
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