EIN 43-1108833

Down Syndrome Association of Greater St Louis

IRS 501(c) type
501(c)(3)
Num. employees
14
Year formed
1976
Most recent tax filings
2023-12-01
Description
Supports, serves and celebrates individuals with Down Syndrome and their families through every stage of life. Offers educational and social programs. Located in St. Louis, MO.
Total revenues
$1,162,034
2023
Total expenses
$1,341,262
2023
Total assets
$1,675,737
2023
Num. employees
14
2023

Program areas at Down Syndrome Association of Greater St Louis

The organization supported individuals and families through the following programs: new parent support, first birthday program/celebration baskets, parent to parent network and mentor program, ages and stages book program, volunteer staffing for Down Syndrome center at children's hospital, regional community groups, family events (family picnics, holiday party), sharing our strategies resource network, information and referral, resource library, health professional outreach, support caregivers of aging adults with Down Syndrome, and educational advocacy and support.
The organization provided the following public awareness and advocacy programs: step up for Down Syndrome (suds) awareness walk, walk in the park, run for 21, world Down Syndrome day, Down Syndrome awareness month, friends for all seasons calendar, awareness bracelets and apparel, social media campaigns, e-communications, publications, and legislative advocacy.
The organization provided the following educational programs: small steps therapy camp and therapeutic playgroups, dsagl rocks music program, conferences, seminars & workshops, steps to independence classes for adults with Down Syndrome, Down Syndrome education specialists program, ready to work employment initiative, community education and outreach, and pop up snack shop social enterprise and job training program.

Who funds Down Syndrome Association of Greater St Louis

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
United Way of Greater St. LouisAll - Health and Well-Being;Ccs - Health and Well-Being; TTP - Health and Well-Being$59,564
Youthbridge Community FoundationProgram Activity Funding$25,650
Christian Community Foundation of Memphis and the Mid-SouthDisease/disorder$25,000
...and 9 more grants received

Personnel at Down Syndrome Association of Greater St Louis

NameTitleCompensation
Erin SuelmannExecutive Director
Patti LaBrottDirector of Development
Emily FisherDirector of Special Events
Linda KamphorstDirector of Family Support
Faith WeathersAdministrative Services and Database Manager
...and 9 more key personnel

Financials for Down Syndrome Association of Greater St Louis

RevenuesFYE 12/2023
Total grants, contributions, etc.$404,939
Program services$68,134
Investment income and dividends$36,032
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-30,189
Net income from fundraising events$669,498
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$13,620
Total revenues$1,162,034

Form 990s for Down Syndrome Association of Greater St Louis

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990View PDF
2022-122023-09-11990View PDF
2021-122022-09-12990View PDF
2020-122021-08-12990View PDF
2019-122021-02-17990View PDF
...and 13 more Form 990s
Data update history
January 3, 2025
Received grants
Identified 1 new grant, including a grant for $1,858 from Keeley Cares Attn Stacey Kamps
November 20, 2024
Updated personnel
Identified 14 new personnel
September 21, 2024
Received grants
Identified 1 new grant, including a grant for $8,997 from The Blackbaud Giving Fund
August 25, 2024
Posted financials
Added Form 990 for fiscal year 2021
May 19, 2024
Received grants
Identified 6 new grant, including a grant for $59,564 from United Way of Greater St. Louis
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
1201 Hanley Industrial CT Suite A
Brentwood, MO 63144
Metro area
St. Louis, MO-IL
County
St. Louis County, MO
Website URL
dsagsl.org/ 
Phone
(314) 833-7554
IRS details
EIN
43-1108833
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1976
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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