EIN 35-2096448

Down Syndrome Association of Ne Indiana

IRS 501(c) type
501(c)(3)
Num. employees
1
State
Year formed
2000
Most recent tax filings
2023-12-01
Description
Down Syndrome Association of Ne Indiana enhances the lives of people living with Down Syndrome by advocating for their behalf, providing information and support to families and professionals, and promoting acceptance and inclusion in Northeast Indiana. Proudly offering programs to over 250 families during 2022, program attendance was on an upswing again despite the negative impacts from the pandemic.
Total revenues
$201,394
2023
Total expenses
$172,454
2023
Total assets
$344,028
2023
Num. employees
1
2023

Program areas at Down Syndrome Association of Ne Indiana

Dsani was proud to offer the following programs to over 250 families during 2023. Although, in some instances, program attendance is still seeing negative impacts from the coronavirus pandemic, overall program attendance was on an upswing again. Infant-toddler playgroup - the playgroup creates opportunities for infant and youngsters (ages 0-4) to play and socialize while their parents and siblings find support in a fun and environment. This group did begin meeting in-person again in 2023. Families who have medically fragile children are still hesitant to attend group outings. Average attendance (in a normal year) - 120 people buddy club - this group offers social and recreational activities for children ages 5-12, typically meeting every two to three months. Current average attendance is 32 people. Activities included: this group met four times in 2023, due to ongoing pandemic concerns, and the risk to children with complex medical issues. Friendship club - aimed at teens and young adults, ages 13 to 21, this group includes teens with Down Syndrome and other learning disabilities, as youths with ds develop friendships in school and in the community. Average attendance for events: 24 (at each of four events throughout the year). Activities included: bowling, lasertag, swimming, skyzone self-advocates - individuals with Down Syndrome who are 21 and older. Total attendance for social events - 177 (6 events in 2023). Activities included: sponsoring an easter egg hunt for younger friends with Down Syndrome, making meals for ronald mcdonald house, pizza & movie night, tie-dye activities, zoo trip, etc. Grandparent's group - this group offers a wonderful opportunity for grandparents to support family members and each other in a nurturing, caring environment. Due to lack of a group chairperson, this group was unable to gather in 2023. Dads group - dads appreciating Down Syndrome. This group provides special events to bring together dads in support of each other and to build strong families. Average attendance - 5 at each of six gatherings throughout the year. Activities included: dinner/fellowship at six different restaurants. The dads group also hosts an annual golf outing. In 2023, the outing hosted 130 golfers and utiliized over 24 volunteers. Moms group - this group was formed to provide dsani mothers the opportunity to network with other mothers, listen to guest speakers and enjoy time with other moms. Attendance during four 2023 dinners - 53. Activities included: dinner meetings -the moms group met five times in 2023, at various locations. Outreach - the outreach committee is undoubtedly our most important, as this is the committee who welcomes families new to the world of Down Syndrome, into our organization. In 2023, we continued meeting with new families in our 11 county service area. This was done to introduce dsani to them, provide information, resources and support. In 2023, we welcomed 14 new families to dsani. Program events - in addition to the special-interest or age-specific activities that dsani typically sponsors in any given year, 2023 saw dsani hosting a number of programs, new and old. We held a number of zoom workshops through the year. Various speakers presented topics pertinent to the Down Syndrome community. We also hosted two in person workshops, bringing nationally recognized Down Syndrome specialists to fort wayne. A total of 162 people attended these sessions. We hosted a talent show for our friends with Down Syndrome in march 2023. Over 127 people attended. We also hosted a new parent breakfast in spring 2023. Over 30 people attended. We hosted a 3-21 (world Down Syndrome day) celebration in 2023. A total of 168 participated in this event. We hosted an easter egg hunt for our families. 57 people participated in this event. Dsani hosted a pony ride event for our families. A total of 45 people participated in this event. In addition to virtual workshops, we also hosted a number of in-person workshops. A total of 89 people attended these offerings. We held the annual dsani tincaps event in august, as this was a totally outdoor event. There were 124 people who attended. Our annual buddy walk, our biggest fundraiser of the year, was able to be held in-person, in early september. A total of over 3,000 people attended this fantastic celebration. We saw near record donations and record attendance at this event, held annually at parkview field. In october 2023, we hosted our families at our annual fall fest event. A total of 143 people participated in this event. We were able to hold our annual holiday party in early december. Just over 300 people attended this very popular event. Only pre-packaged snack food was served, visits with santa enjoyed and games and craft activities were enjoyed by children in attendance. Along with our many groups and programs, dsani also provides: -library resources -informational emails to members -outreach & educational materials to medical professionals & community groups -resource referrals to families who request such -website -a tremendous support/mentor network for parents we also continued nurturing relationships with other community groups, professional groups, etc. As much as possible. Our dsani family continues to grow, as do our offerings to our families.

Who funds Down Syndrome Association of Ne Indiana

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Aws Foundation / William Swiss Gen PTRProgramming$20,000
Allegis Group FoundationGeneral Use$750

Personnel at Down Syndrome Association of Ne Indiana

NameTitleCompensation
Shelley YoderExecutive Director$72,600
Andrea HillTreasurer$0
Taylor FranzenPast Treasurer$0

Financials for Down Syndrome Association of Ne Indiana

RevenuesFYE 12/2023
Total grants, contributions, etc.$190,733
Program services$0
Investment income and dividends$423
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$10,238
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$201,394

Form 990s for Down Syndrome Association of Ne Indiana

Fiscal year endingDate received by IRSFormPDF link
2023-122024-07-26990View PDF
2022-122023-06-08990View PDF
2021-122022-06-01990EZView PDF
2020-122021-07-23990EZView PDF
2019-122021-04-26990EZView PDF
...and 9 more Form 990s
Data update history
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $20,000 from Aws Foundation / William Swiss Gen PTR
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
August 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 22, 2023
Updated personnel
Identified 1 new personnel
May 7, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsState / local levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
PO Box 13611
Fort Wayne, IN 46865
Metro area
Fort Wayne, IN
County
Allen County, IN
Website URL
dsani.org/ 
Phone
(260) 471-9964
IRS details
EIN
35-2096448
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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