Program areas at Down Syndrome Indiana
The buddy walk program welcomes participants of all ages and abilities. The goal of the program is to promote acceptance and inclusion of people with Down Syndrome. This program is held annually in three cities in Indiana including indianapolis, lafyette, and terre haute. The walks are in-person. They had a combined 5,000 participants.
Parent support and education:new parent packets - Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down Syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals. A spanish version of the new parent packet is also available! There were 175 new parent packets distributed in 2023.community support groups - Down Syndrome Indiana recognizes that there are varied interests among the Down Syndrome community. Examples include geographical considerations, cultural considerations, educational considerations, and age considerations. Down Syndrome Indiana recognizes the benefits of a community group among these families. Community groups include: cass area Down Syndrome (cads), cuenta conmigo, dads appreciating Down Syndrome (dads), Down Syndrome Indiana lafayette, Down Syndrome Indiana terre haute, Down Syndrome Indiana east central playgroup, mom's night out, Down Syndrome Indiana self-advocates, Down Syndrome Indiana teens, Delaware county/muncie area, and westside.first call - first call volunteers make a difference in lives by serving as the first point of contact with a new family. A first call parent is trained in empathetic listening skills and is a new parent's first look at what life with a child with Down Syndrome is like.medical outreach - the goal is to build relationships of trust and respect between medical providers and the Down Syndrome community. Provide accurate and up-to-date information about Down Syndrome to medical providers.the learning program - the learning program provides direct services through the community and was developed to supplement traditional education in reading and math through direct instruction and materials for students with Down Syndrome or other developmental disabilities.awareness presentations - Down Syndrome Indiana representatives spoke to 841 people in 2023 through Down Syndrome awareness presentations. We speak to k-12 students, college students, medical professionals, service providers, and corporate partners and organizations.during 2023, Down Syndrome Indiana was able to reach 2,741 parents and 1,387 individuals with Down Syndrome through their programming.
Grants made by Down Syndrome Indiana
Who funds Down Syndrome Indiana
Grants from foundations and other nonprofits
Personnel at Down Syndrome Indiana
Name | Title | Compensation | Date of data |
---|
Macy Pohl | Executive Director | | 2023-08-22 |
Lisa Wells | Past Former Executive Director | $13,456 | 2022-12-31 |
Stephanie Garner | Past Interim Executive Director | $47,241 | 2022-12-31 |
Brad Wilt | Board Member | $0 | 2023-03-23 |
Rob Morgan | Treasurer | $0 | 2022-12-31 |
...and 2 more key personnel |
Financials for Down Syndrome Indiana
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $305,304 | $266,209 | 14.7% |
Program services | $0 | $0 | - |
Investment income and dividends | $12,895 | $532 | 2323.9% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $39,085 | $78,834 | -50.4% |
Net income from gaming activities | $2,087 | $1,549 | 34.7% |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $284 | -100% |
Total revenues | $359,371 | $347,408 | 3.4% |
Organizations like Down Syndrome Indiana
Organization | Type | Location | Revenue |
---|
Club 21 Learning and Resource Center | 501(c)(3) | Pasadena, CA | $671,813 |
Down Syndrome Innovations | 501(c)(3) | Shawnee Mission, KS | $1,538,198 |
Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
Down Syndrome Association of Middle Tennessee | 501(c)(3) | Hermitage, TN | $527,095 |
Down Syndrome Assciation of Maryland | 501(c)(3) | Towson, MD | $155,279 |
Virginia Hemophilia Foundation | 501(c)(3) | Richmond, VA | $512,482 |
Down Syndrome Association of Pittsburgh | 501(c)(3) | Pittsburgh, PA | $378,995 |
Down Syndrome Association of Central Florida | 501(c)(3) | Winter Park, FL | $639,623 |
Rio Grande Down Syndrome Network | 501(c)(3) | Albuquerque, NM | $221,960 |
Down Syndrome Support Group of South Central Kentucky | 501(c)(3) | Bowling Green, KY | $205,252 |
Data update history
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,167 from AmazonSmile Foundation October 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 8, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disordersDevelopmentally disabled
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 615 N Alabma St 205
- Indianapolis, IN 46204
- Metro area
- Indianapolis-Carmel-Anderson, IN
- County
- Marion County, IN
- Website URL
- dsindiana.org/Â
- Phone
- (317) 925-7617
IRS details
- EIN
- 80-0732286
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2004
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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