EIN 80-0732286

Down Syndrome Indiana

IRS 501(c) type
501(c)(3)
Num. employees
8
State
Year formed
2004
Most recent tax filings
2023-12-01
Description
Down Syndrome Indiana enhances the lives of individuals with Down Syndrome and their families through advising, educating, encouraging, connecting, including, and advocating. It provides comprehensive parent packets to new parents containing vital information about Down Syndrome. The Buddy Walk program promotes acceptance and inclusion of people with Down Syndrome and is held annually in three cities across Indiana, including Indianapolis.
Total revenues
$359,371
2023
Total expenses
$373,087
2023
Total assets
$704,008
2023
Num. employees
8
2023

Program areas at Down Syndrome Indiana

The buddy walk program welcomes participants of all ages and abilities. The goal of the program is to promote acceptance and inclusion of people with Down Syndrome. This program is held annually in three cities in Indiana including indianapolis, lafyette, and terre haute. The walks are in-person. They had a combined 5,000 participants.
Parent support and education:new parent packets - Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down Syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals. A spanish version of the new parent packet is also available! There were 175 new parent packets distributed in 2023.community support groups - Down Syndrome Indiana recognizes that there are varied interests among the Down Syndrome community. Examples include geographical considerations, cultural considerations, educational considerations, and age considerations. Down Syndrome Indiana recognizes the benefits of a community group among these families. Community groups include: cass area Down Syndrome (cads), cuenta conmigo, dads appreciating Down Syndrome (dads), Down Syndrome Indiana lafayette, Down Syndrome Indiana terre haute, Down Syndrome Indiana east central playgroup, mom's night out, Down Syndrome Indiana self-advocates, Down Syndrome Indiana teens, Delaware county/muncie area, and westside.first call - first call volunteers make a difference in lives by serving as the first point of contact with a new family. A first call parent is trained in empathetic listening skills and is a new parent's first look at what life with a child with Down Syndrome is like.medical outreach - the goal is to build relationships of trust and respect between medical providers and the Down Syndrome community. Provide accurate and up-to-date information about Down Syndrome to medical providers.the learning program - the learning program provides direct services through the community and was developed to supplement traditional education in reading and math through direct instruction and materials for students with Down Syndrome or other developmental disabilities.awareness presentations - Down Syndrome Indiana representatives spoke to 841 people in 2023 through Down Syndrome awareness presentations. We speak to k-12 students, college students, medical professionals, service providers, and corporate partners and organizations.during 2023, Down Syndrome Indiana was able to reach 2,741 parents and 1,387 individuals with Down Syndrome through their programming.

Grants made by Down Syndrome Indiana

GranteeGrant descriptionAmount
Lucky Mama ProjectLucky Mama Project$0
Riley Children's EndowmentCamp Hi Lite$0

Who funds Down Syndrome Indiana

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Healthcare Initiatives (HCE)General Support - Outreach Initiative$25,000
Enterprise Holdings FoundationProgram Support$3,000
Enterprise Holdings FoundationProgram Support$3,000
...and 5 more grants received

Personnel at Down Syndrome Indiana

NameTitleCompensation
Macy PohlExecutive Director
Lisa WellsPast Former Executive Director$13,456
Stephanie GarnerPast Interim Executive Director$47,241
Brad WiltBoard Member$0
Rob MorganTreasurer$0
...and 2 more key personnel

Financials for Down Syndrome Indiana

RevenuesFYE 12/2023
Total grants, contributions, etc.$305,304
Program services$0
Investment income and dividends$12,895
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$39,085
Net income from gaming activities$2,087
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$359,371

Form 990s for Down Syndrome Indiana

Fiscal year endingDate received by IRSFormPDF link
2023-122024-07-08990View PDF
2022-122023-08-22990View PDF
2021-122022-06-13990View PDF
2020-122021-07-06990View PDF
2019-122021-04-02990View PDF
...and 8 more Form 990s
Data update history
July 23, 2024
Received grants
Identified 2 new grant, including a grant for $3,000 from Enterprise Holdings Foundation
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,167 from AmazonSmile Foundation
November 26, 2023
Received grants
Identified 1 new grant, including a grant for $2,500 from Healthcare Initiatives (HCE)
October 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 8, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disordersDevelopmentally disabled
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
615 N Alabma St 205
Indianapolis, IN 46204
Metro area
Indianapolis-Carmel-Anderson, IN
County
Marion County, IN
Website URL
dsindiana.org/ 
Phone
(317) 925-7617
IRS details
EIN
80-0732286
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2004
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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