Program areas at Down Syndrome Innovations
Public awareness - dsi welcomes 50-60 new babies and their families each year. Our parent-to-parent program provides a welcome basket, quarterly support breakfasts and parent-to-parent matches. Our bi-monthly connections newsletter is distributed to 3,500 households and contains upcoming events, community group activities, and up-to-date articles on medical or educational best practices for people with Down Syndrome. Dsi supports 14 community groups to host 8-10 activities in their immediate geographical region to connect members on a smaller scale. Throughout the year, dsi facilitates awareness initiatives in schools and in the community often showing just liike you-down Syndrome film, to foster positive attitudes and educate individuals about Down Syndrome. Should any of our members experience an overnight stay in the hospital, dsi provides a 50 meal voucher to support costs associated with the stay. Members can show support of the dsi brand by purchasing branded items to generate awareness within their community. All of these programs and others are shared in detail in the dsi annual report.
Social events - dsi supports members throughout their life span by hosting special events to help members and families engage and connect with one another. Social events offer unique opportunities for families to meet, form friendships, and share resources. We host 5 all guild activities throughout the year which welcome the member with Down Syndrome and immediate familty members to activities located around the metro. Elementary aged students meet quarterly at the dsi office for events and preparation for the s.t.a.r.s. Program which meets weekly once members turn 12 years old. Adults can enjoy monthly dsg activities in addition to regular community events available to them. Each member is recognized during his/her birthday month through the dsi birthday blub which sends a card to each member.
Public education - dsi hosts annual educational conferences to bring together experts in the field to discuss best practices in working with indiviudals with Down Syndrome. Scholarships are available for dsi sponsored or national sponsored conferences. Dsi also hosts seminars and workshops throughout the year as reqested by dsi members. Dsi partners with 45 local school districts who have named Down Syndrome specialists who act as liaisons between dsi, schools, and families impacted by Down Syndrome. We offer the specailists a resource manual, free registration to dsi conferences, bi-annual breakfasts to exchange ideas and make dsi aware of school district needs and ongoing updates regarding research and best practices for educating students with Down syndrom. Dsi also offers individualized training and private consultations for school districts who have Down Syndrome specialists. Information can be accessed by anyone in the community through dsi's 24-hour phone information line.
Grants made by Down Syndrome Innovations
Who funds Down Syndrome Innovations
Grants from foundations and other nonprofits
Personnel at Down Syndrome Innovations
Name | Title | Compensation | Date of data |
---|
Jason Drummond | Chief Executive Officer | $206,250 | 2022-12-31 |
Joe Roos | Treasurer | $0 | 2023-11-15 |
Amy Stoll | Vice President of Philanthropy / Chief Development Officer / Executive Director | $96,412 | 2022-12-31 |
Mike Frazier | Vice President | $0 | 2022-12-31 |
Amy Fauss | Secretary | $0 | 2022-12-31 |
...and 6 more key personnel |
Financials for Down Syndrome Innovations
Revenues | FYE 12/2022 |
---|
Total grants, contributions, etc. | $1,164,204 |
Program services | $166,907 |
Investment income and dividends | $11,970 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $4,727 |
Net income from fundraising events | $176,638 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $13,752 |
Total revenues | $1,538,198 |
Organizations like Down Syndrome Innovations
Organization | Type | Location | Revenue |
---|
Hemophilia Foundation of Northern California | 501(c)(3) | Martinez, CA | $515,346 |
Down Syndrome Association of Greater Cincinnati | 501(c)(3) | Cincinnati, OH | $2,821,991 |
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,354,289 |
Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
Hemophilia Foundation of Michigan | 501(c)(3) | Ypsilanti, MI | $3,941,132 |
Down Syndrome Association of Wisconsin | 501(c)(3) | West Allis, WI | $3,222,790 |
Down Syndrome Association of Greater St Louis | 501(c)(3) | Saint Louis, MO | $1,150,647 |
Hemophilia Foundation of Southern California (HFSC) | 501(c)(3) | Pasadena, CA | $1,225,164 |
Great Lakes Hemophilia Foundation | 501(c)(3) | Milwaukee, WI | $1,557,533 |
Down Syndrome Association of Middle Tennessee | 501(c)(3) | Hermitage, TN | $527,095 |
Data update history
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 9, 2024
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 5916 Dearborn St
- Shawnee Mission, KS 66202
- Metro area
- Kansas City, MO-KS
- County
- Johnson County, KS
- Website URL
- kcdsi.org/Â
- Phone
- (913) 384-4848
IRS details
- EIN
- 43-1427760
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1986
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Reporting Incomplete
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0280692
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-11-06
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