EIN 43-1427760

Down Syndrome Innovations

IRS 501(c) type
501(c)(3)
Num. employees
26
State
Year formed
1986
Most recent tax filings
2022-12-01
Description
DSI provides support and resources for individuals with Down Syndrome, their families, and professionals. It promotes awareness and education through parent-to-parent programs and conferences.
Also known as...
Down Syndrome Guild of Greater Kansas City
Total revenues
$1,538,198
2022
Total expenses
$2,036,245
2022
Total assets
$4,292,775
2022
Num. employees
26
2022

Program areas at Down Syndrome Innovations

Public awareness - dsi welcomes 50-60 new babies and their families each year. Our parent-to-parent program provides a welcome basket, quarterly support breakfasts and parent-to-parent matches. Our bi-monthly connections newsletter is distributed to 3,500 households and contains upcoming events, community group activities, and up-to-date articles on medical or educational best practices for people with Down Syndrome. Dsi supports 14 community groups to host 8-10 activities in their immediate geographical region to connect members on a smaller scale. Throughout the year, dsi facilitates awareness initiatives in schools and in the community often showing just liike you-down Syndrome film, to foster positive attitudes and educate individuals about Down Syndrome. Should any of our members experience an overnight stay in the hospital, dsi provides a 50 meal voucher to support costs associated with the stay. Members can show support of the dsi brand by purchasing branded items to generate awareness within their community. All of these programs and others are shared in detail in the dsi annual report.
Social events - dsi supports members throughout their life span by hosting special events to help members and families engage and connect with one another. Social events offer unique opportunities for families to meet, form friendships, and share resources. We host 5 all guild activities throughout the year which welcome the member with Down Syndrome and immediate familty members to activities located around the metro. Elementary aged students meet quarterly at the dsi office for events and preparation for the s.t.a.r.s. Program which meets weekly once members turn 12 years old. Adults can enjoy monthly dsg activities in addition to regular community events available to them. Each member is recognized during his/her birthday month through the dsi birthday blub which sends a card to each member.
Public education - dsi hosts annual educational conferences to bring together experts in the field to discuss best practices in working with indiviudals with Down Syndrome. Scholarships are available for dsi sponsored or national sponsored conferences. Dsi also hosts seminars and workshops throughout the year as reqested by dsi members. Dsi partners with 45 local school districts who have named Down Syndrome specialists who act as liaisons between dsi, schools, and families impacted by Down Syndrome. We offer the specailists a resource manual, free registration to dsi conferences, bi-annual breakfasts to exchange ideas and make dsi aware of school district needs and ongoing updates regarding research and best practices for educating students with Down syndrom. Dsi also offers individualized training and private consultations for school districts who have Down Syndrome specialists. Information can be accessed by anyone in the community through dsi's 24-hour phone information line.

Grants made by Down Syndrome Innovations

GranteeGrant descriptionAmount
Children's Mercy Hospital FoundationPublic Education Assistance$6,000
Lumind Idsc FoundationAssist Ongoing Research To Improve the Lives of People With Downs Syndrome$5,000

Who funds Down Syndrome Innovations

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$23,750
Nebraska Community Foundation (NCF)Educated Workforce Support$20,000
American Online Giving FoundationGeneral Support$18,788
...and 8 more grants received

Personnel at Down Syndrome Innovations

NameTitleCompensation
Jason DrummondChief Executive Officer$206,250
Joe RoosTreasurer$0
Amy StollVice President of Philanthropy / Chief Development Officer / Executive Director$96,412
Mike FrazierVice President$0
Amy FaussSecretary$0
...and 6 more key personnel

Financials for Down Syndrome Innovations

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,164,204
Program services$166,907
Investment income and dividends$11,970
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$4,727
Net income from fundraising events$176,638
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$13,752
Total revenues$1,538,198

Form 990s for Down Syndrome Innovations

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2020-122021-11-15990View PDF
2019-122020-12-22990View PDF
2018-122020-02-05990View PDF
2017-122018-10-16990View PDF
...and 8 more Form 990s
Data update history
July 15, 2024
Received grants
Identified 3 new grant, including a grant for $10,000 from Sam Price Family Foundation
May 19, 2024
Received grants
Identified 6 new grant, including a grant for $20,000 from Nebraska Community Foundation (NCF)
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 9, 2024
Updated personnel
Identified 1 new personnel
November 27, 2023
Received grants
Identified 3 new grant, including a grant for $16,236 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
5916 Dearborn St
Shawnee Mission, KS 66202
Metro area
Kansas City, MO-KS
County
Johnson County, KS
Website URL
kcdsi.org/ 
Phone
(913) 384-4848
IRS details
EIN
43-1427760
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1986
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Reporting Incomplete
FTB status revoked
Not revoked
AG Registration Number
CT0280692
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-11-06
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