EIN 45-5437249

Dysautonomia International

Name: Dysautonomia International financials for 2023
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

East Moriches

State

New York

Year formed

2012

Most recent tax filings

2023-12-01

NTEE code, primary

G50: Nerve, Muscle, and Bone Diseases

Description

Dysautonomia International aims to increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research. It organizes conferences to educate patients, caregivers and medical professionals on dysautonomia conditions, treatments and research. The organization also provides research funding for projects at major University Research Centers.

Total revenues

$1,221,343

2023

Total expenses

$1,241,572

2023

Total assets

$2,754,023

2023

Num. employees

2023

Program areas at Dysautonomia International

Providing research funding for projects at major University Research Centers.

Advocacy Initiatives - Patient Support and Empowerment programs.

Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.

Grants made by Dysautonomia International

Grantee	Grant description	Grant year	Amount
University of Utah	Dr. Melissa Cortez Grant 2202-5 -pu	2023-12	$45,000
Dartmouth-Hitchcock (D-H)	TCD Device Dr. Nathanial Robbins	2023-12	$15,000

Who funds Dysautonomia International

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Bny Mellon Charitable Gift Fund	2023-12	To Further the Organization's Exempt Purpose	$100,000
Schwab Charitable Fund	2023-06	Health	$87,533
American Endowment Foundation	2023-12	Disease/disorder	$50,500
...and 27 more grants received totalling $466,266

Personnel at Dysautonomia International

Name	Title	Compensation	Date of data
Lauren Stiles	President and Chief Executive Officer	$131,250	2024-11-06
Shannon Koplitz	Treasurer	$0	2024-11-06

Financials for Dysautonomia International

Revenues	FYE 12/2023	FYE 12/2022	% Change
Total grants, contributions, etc.	$1,118,815	$1,481,630	-24.5%
Program services	$116,462	$13,000	795.9%
Investment income and dividends	$552	$456	21.1%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$-14,486	$-13,730	-5.5%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$4,310	-100%
Miscellaneous revenues	$0	$0	-
Total revenues	$1,221,343	$1,485,666	-17.8%

Form 990s for Dysautonomia International

Fiscal year ending	Date received by IRS	Form	PDF link
2023-12	2024-06-20	990	View PDF
2022-12	2023-11-06	990	View PDF
2021-12	2022-11-03	990	View PDF
2020-12	2021-12-28	990	View PDF
2019-12	2021-04-02	990	View PDF
...and 6 more Form 990s

Organizations like Dysautonomia International

Organization	Type	Location	Revenue
FSHD Society	501(c)(3)	Randolph, MA	$4,455,414
Myasthenia Gravis Foundation of America (MGFA)	501(c)(3)	Westborough, MA	$3,555,325
Miles for Migraine	501(c)(3)	Jericho, VT	$1,647,652
Davis Phinney Foundation	501(c)(3)	Louisville, CO	$3,779,269
The Cure Starts Now	501(c)(3)	Cincinnati, OH	$5,080,693
Reflex Sympathetic Dystrophy Syndrome Association of America	501(c)(3)	Milford, CT	$824,669
Tourette Association of America	501(c)(3)	Bayside, NY	$5,048,195
National Scleroderma Foundation	501(c)(3)	Danvers, MA	$4,941,722
Jett Foundation	501(c)(3)	Plymouth, MA	$3,537,013
Fabry Support and Information Group (FSIG)	501(c)(3)	Concordia, MO	$443,701

Data update history

January 14, 2025

Received grants

Identified 5 new grant, including a grant for $50,000 from The Austin Memorial Foundation

November 6, 2024

Updated personnel

Identified 2 new personnel

October 23, 2024

Received grants

Identified 7 new grant, including a grant for $100,000 from Bny Mellon Charitable Gift Fund

August 14, 2024

Posted financials

Added Form 990 for fiscal year 2023

August 11, 2024

Updated personnel

Identified 2 new personnel

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Conducts researchFundraising eventsNational levelCommunity engagement / volunteeringTax deductible donationsAccepts online donations

General information

Address: PO Box 596; East Moriches, NY 11940
Metro area: New York-Newark-Jersey City, NY-NJ-PA
County: Suffolk County, NY
Website URL: dysautonomiainternational.org/
Phone: (631) 202-1720

IRS details

EIN: 45-5437249
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 2012
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

California AB-488 details

AB 488 status: May Operate or Solicit for Charitable Purposes
Charity Registration status: Current
FTB status revoked: Not revoked
AG Registration Number: CT0262440
FTB Entity ID: 4243309
AB 488 data last updated ("as-of") date: 2025-03-19

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Dysautonomia International

Program areas at Dysautonomia International

Grants made by Dysautonomia International

Who funds Dysautonomia International

Personnel at Dysautonomia International

Financials for Dysautonomia International

Form 990s for Dysautonomia International

Organizations like Dysautonomia International

Nonprofits

Product

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