EIN 26-3776187

Team Telomere

IRS 501(c) type
501(c)(3)
Num. employees
4
State
Year formed
2009
Most recent tax filings
2022-12-01
Description
Team Telomere supports patients and funds research for Telomere Biology Disorders. Offers scholarship, and received Million Dollar Bike Ride Grant with UPenn.
Also known as...
Dyskeratosis Congenita Outreach
Total revenues
$715,339
2022
Total expenses
$360,770
2022
Total assets
$527,239
2022
Num. employees
4
2022

Program areas at Team Telomere

Scientific Symposiums - We host dynamic meetings bringing together the researchers and clinicians of our community.
Million Dollar Bike Ride - The Million Dollar Bike Ride is a matching grant through the University of Pennsylvanias Orphan Disease Center that excels our ability to fund quality science for Telomere Biology Disorders.
Nancy Cornelius Scholarship Fund - The Nancy Cornelius Scholarship Fund NCSF is a college scholarship for children and young adults with Telomere Biology Disorders.

Grants made by Team Telomere

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)Research$30,000
Uplifting AthletesResearch$10,244

Who funds Team Telomere

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$650,000
Schwab Charitable FundHealth$15,350
Global GenesHealth Equity Grant$15,000
...and 4 more grants received

Personnel at Team Telomere

NameTitleCompensation
Katherine StevensExecutive Director$37,500
Haley GonzalezAssistant To the Executive Director$6,600
Bruce FriedmanTreasurer$0
Heather KagelVice President and Chair of Outreach Committee$0
Nicole BjerkeVice President / Board Director$0
...and 1 more key personnel

Financials for Team Telomere

RevenuesFYE 12/2022
Total grants, contributions, etc.$699,661
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-6,611
Net income from fundraising events$19,968
Net income from gaming activities$2,321
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$715,339

Form 990s for Team Telomere

Fiscal year endingDate received by IRSFormPDF link
2022-122024-02-26990View PDF
2021-122022-11-14990EZView PDF
2020-122022-04-28990EZView PDF
2019-122021-04-27990EZView PDF
2018-122019-04-30990EZView PDF
Data update history
May 21, 2024
Updated personnel
Identified 2 new personnel
May 19, 2024
Used new vendors
Identified 1 new vendor, including
January 1, 2024
Received grants
Identified 2 new grant, including a grant for $15,000 from Global Genes
December 24, 2023
Received grants
Identified 2 new grant, including a grant for $650,000 from Silicon Valley Community Foundation (SVCF)
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsNational levelGala fundraisersTax deductible donations
General information
Address
PO Box 1909
Coeur D Alene, ID 83816
Metro area
Coeur d'Alene, ID
County
Kootenai County, ID
Website URL
teamtelomere.org/ 
Phone
(208) 215-1347
IRS details
EIN
26-3776187
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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