EIN 20-4904437

Endometriosis Foundation of America (EFA)

IRS 501(c) type
501(c)(3)
Num. employees
4
Year formed
2006
Most recent tax filings
2022-12-01
Description
The Endometriosis Foundation of America (EFA) is a non-profit organization focused on increasing disease recognition, providing advocacy, facilitating expert surgical training, and funding landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EFA places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
Total revenues
$1,302,317
2022
Total expenses
$1,120,272
2022
Total assets
$2,270,980
2022
Num. employees
4
2022

Program areas at EFA

The endofound education program is a school and community-based education program designed to educate high school students and raise awareness about Endometriosis through an interactive program which includes both education of the disease and to teach students how to advocate for themselves. To date, the program has educated 40,000 students in the us and abroad.
Research and grants - endofound funds cutting-edge medical research at medical institutions and hospitals in the us predominantly, and in other countries. Research is conducted on the etiology of the disease, genetic implications, and organs affected by the disease, among others, all with the goal of developing better diagnostics and better treatments.
Conferences and webinars: historically endofound runs two large annual conferences. The first is a medical conference which gathers physicians, surgeons, researchers, nurses, from all over the world to learn about current trends and best practices for the treatment of Endometriosis. The second is a patient conference bringing patients and physicians together to learn in depth about Endometriosis, management of the disease, support available and wellness training. Both conferences are held in march during Endometriosis awareness month. Due to covid-19 restrictions which began days before the scheduled conferences, endofound successfully pivoted to on-line webinars and conferences through the end of 2021 so that it could continue to bring both patients and medical professionals together, and deliver quality information that the groups have come to rely on.

Grants made by EFA

GranteeAmount
The University of Cincinnati Foundation$25,000

Who funds Endometriosis Foundation of America (EFA)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Jack Rudin Family FoundationEndofound Fellowship$150,000
Rudin Management CompanyGeneral Support$75,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$60,347
...and 18 more grants received totalling $535,084

Personnel at EFA

NameTitleCompensation
Carolyn RicciChief Development Officer
Dan MartinExecutive and Medical Director
Margaret CianciExecutive Director$180,779
Jeanne RebillardDirector of Communications and Government Relations
Carolyn MayerProgram Director , Enpowr
...and 5 more key personnel

Financials for EFA

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,292,962
Program services$0
Investment income and dividends$2,015
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$7,340
Total revenues$1,302,317

Form 990s for EFA

Fiscal year endingDate received by IRSFormPDF link
2022-122024-09-04990View PDF
2022-122023-11-15990View PDF
2021-122022-10-20990View PDF
2020-122021-07-07990View PDF
2019-122021-10-18990View PDF
...and 8 more Form 990s
Data update history
October 15, 2024
Updated personnel
Identified 2 new personnel
September 21, 2024
Received grants
Identified 7 new grant, including a grant for $75,000 from Rudin Management Company
July 9, 2024
Received grants
Identified 4 new grant, including a grant for $150,000 from Jack Rudin Family Foundation
January 23, 2024
Updated personnel
Identified 1 new personnel
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsReceives government fundingTax deductible donationsAccepts online donations
General information
Address
872 Fifth Ave
New York, NY 10065
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
endofound.org/ 
Phone
(646) 854-3337
Facebook page
endofound 
Twitter profile
@endofound 
IRS details
EIN
20-4904437
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2006
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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