Program areas at EFA
The endofound education program is a school and community-based education program designed to educate high school students and raise awareness about Endometriosis through an interactive program which includes both education of the disease and to teach students how to advocate for themselves. To date, the program has educated 40,000 students in the us and abroad.
Research and grants - endofound funds cutting-edge medical research at medical institutions and hospitals in the us predominantly, and in other countries. Research is conducted on the etiology of the disease, genetic implications, and organs affected by the disease, among others, all with the goal of developing better diagnostics and better treatments.
Conferences and webinars: historically endofound runs two large annual conferences. The first is a medical conference which gathers physicians, surgeons, researchers, nurses, from all over the world to learn about current trends and best practices for the treatment of Endometriosis. The second is a patient conference bringing patients and physicians together to learn in depth about Endometriosis, management of the disease, support available and wellness training. Both conferences are held in march during Endometriosis awareness month. Due to covid-19 restrictions which began days before the scheduled conferences, endofound successfully pivoted to on-line webinars and conferences through the end of 2021 so that it could continue to bring both patients and medical professionals together, and deliver quality information that the groups have come to rely on.
Who funds Endometriosis Foundation of America (EFA)
Grants from foundations and other nonprofits
Personnel at EFA
Name | Title | Compensation | Date of data |
---|
Carolyn Ricci | Chief Development Officer | | 2024-10-15 |
Dan Martin | Executive and Medical Director | | 2024-10-15 |
Margaret Cianci | Executive Director | $180,779 | 2021-12-31 |
Jeanne Rebillard | Director of Communications and Government Relations | | 2024-10-15 |
Carolyn Mayer | Program Director , Enpowr | | 2024-10-15 |
...and 5 more key personnel |
Financials for EFA
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $1,292,962 | $1,882,511 | -31.3% |
Program services | $0 | $0 | - |
Investment income and dividends | $2,015 | $1,479 | 36.2% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $7,340 | $9,564 | -23.3% |
Total revenues | $1,302,317 | $1,893,554 | -31.2% |
Organizations like EFA
Organization | Type | Location | Revenue |
---|
Les Turner ALS Foundation | 501(c)(3) | Skokie, IL | $2,682,408 |
CURE Epilepsy (CURE) | 501(c)(3) | Chicago, IL | $6,183,163 |
Joan Dancy and P A L S | 501(c)(3) | Red Bank, NJ | $1,208,279 |
Florida Hemophilia Association | 501(c)(3) | Fort Lauderdale, FL | $436,536 |
Epilepsy Foundation of Missouri and Kansas | 501(c)(3) | Saint Louis, MO | $373,950 |
Epilepsy Foundation of East Tennessee | 501(c)(3) | Knoxville, TN | $945,366 |
Lone Star Paralysis Foundation (LSPF) | 501(c)(3) | Austin, TX | $1,156,506 |
Epilepsy Foundation Central and South Texas | 501(c)(3) | San Antonio, TX | $1,322,006 |
Epilepsy Foundation of Eastern Pa | 501(c)(3) | Philadelphia, PA | $862,515 |
Epilepsy Alliance Florida | 501(c)(3) | Miami, FL | $6,029,455 |
Data update history
October 15, 2024
Updated personnel
Identified 2 new personnel
January 23, 2024
Updated personnel
Identified 1 new personnel
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsReceives government fundingTax deductible donationsAccepts online donations
General information
- Address
- 872 Fifth Ave
- New York, NY 10065
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- endofound.org/Â
- Phone
- (646) 854-3337
- Facebook page
- endofoundÂ
- Twitter profile
- @endofoundÂ
IRS details
- EIN
- 20-4904437
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2006
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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