1. Directory
  2. California
  3. Los Angeles
  4. Epidermolysis Bullosa Medical Research Foundation
EIN 94-3130081

Epidermolysis Bullosa Medical Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Los Angeles
State
California
Year formed
1990
Most recent tax filings
2023-08-01
NTEE code, primary
H50: Nerve, Muscle, and Bone Research
Description
The Epidermolysis Bullosa Medical Research Foundation funds various research organizations across the United States for children's health with the primary purpose of finding a cure for Epidermolysis Bullosa. Its programs include funding medical research and it is located in Los Angeles, CA.
Also known as...
E B Medical Research Foundation
Total revenues
$1,354,120
2023
Total expenses
$345,807
2023
Total assets
$3,859,639
2023
Num. employees
0
2023

Program areas at Epidermolysis Bullosa Medical Research Foundation

The ebmrf is dedicated to finding a cure for Epidermolysis Bullosa by funding the best cutting edge and innovative Research and seeking out new researchers and scientists at america's top institutions. Through our ongoing joint funding with eb Research partnership of individual Research studies and clinical trials at acclaimed universities, 21 eb clinical Research consortium (ebcrc) sites and through our annual fundraisers, we are committed to funding a cure and successful treatments for eb. Grants are evaluated and once approved, are funded on a 1 year basis, and are subject to project milestones. Multi-year grants are reviewed annually and evaluated on their progress and our available funding. All grants include a 5% limit on indirect costs.

Grants made by Epidermolysis Bullosa Medical Research Foundation

GranteeGrant descriptionAmount
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityResearch$164,627
Phoenix Children's HospitalEb Clinical Research Consortium$116,758
Columbia UniversityResearch$9,589

Who funds Epidermolysis Bullosa Medical Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$56,700
Schwab Charitable FundHealth$20,100
National Philanthropic TrustHealth$18,000
...and 4 more grants received

Personnel at Epidermolysis Bullosa Medical Research Foundation

NameTitleCompensation
Paul JosephChief Financial Officer$0
Andrea Pett-JosephPresident and Executive Director / Executive Vice President$0
Jerry J JosephChairman$0
Carol PettSecretary$0

Financials for Epidermolysis Bullosa Medical Research Foundation

RevenuesFYE 08/2023
Total grants, contributions, etc.$1,369,917
Program services$0
Investment income and dividends$99,039
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-114,836
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,354,120

Form 990s for Epidermolysis Bullosa Medical Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-082024-07-10990View PDF
2022-082023-10-15990View PDF
2021-082022-07-13990View PDF
2020-082021-07-15990View PDF
2019-082020-09-15990View PDF
...and 9 more Form 990s
Data update history
September 1, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 31, 2024
Updated personnel
Identified 1 new personnel
August 26, 2024
Used new vendors
Identified 1 new vendor, including
July 15, 2024
Received grants
Identified 4 new grant, including a grant for $10,000 from California Community Foundation
December 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
2757 Anchor Ave
Los Angeles, CA 90064
Metro area
Los Angeles-Long Beach-Anaheim, CA
County
Los Angeles County, CA
Website URL
ebmrf.org/ 
Phone
(310) 994-9237
IRS details
EIN
94-3130081
Fiscal year end
August
Taxreturn type
Form 990
Year formed
1990
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H50: Nerve, Muscle, and Bone Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Not Operate or Solicit for Charitable Purposes
Charity Registration status
Delinquent
FTB status revoked
Not revoked
AG Registration Number
079601
FTB Entity ID
1515595
AB 488 data last updated ("as-of") date
2024-10-16
Free account sign-up

Want updates when Epidermolysis Bullosa Medical Research Foundation has new information, or want to find more organizations like Epidermolysis Bullosa Medical Research Foundation?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2024 Nonprofit Metrics LLC
Terms of Service and Privacy Policy