Program areas at Epilepsy Association
Patient services: the Association provides community case management and mental health assessment services to adult clients who are affected by Epilepsy. Clients meet with agency social workers to establish individualized goals. Plans are established to assist clients in meeting those needs. An emphasis is placed on consumer choice, maintaining medical stability, and improving the quality of life for clients. In 2023, there were 1,312 adults who received case management and other social services.
Kids and family: the Association provides support for families who have a child with Epilepsy. The Association staff assess the needs of each family member with one-on-one support and connects them with community services, provides general assistance, Epilepsy education and advocacy. Services are tailored to meet the unique needs of each family. In 2023, there were 300 children and families who were served through programming and 125 virtual visits provided to individuals and schools.
Public health education: the Association provides educational presentations to a variety of community groups, students, teachers, and the general public to increase the awareness and understanding of Epilepsy. Education is provided about Epilepsy facts, seizure recognition, and Epilepsy first aid. 14,799 individuals were reached through community education programs and another 186 individuals accessed assistance through information and referral programming.
Who funds Epilepsy Association
Grants from foundations and other nonprofits
Personnel at Epilepsy Association
| Name | Title | Compensation | Date of data |
|---|
| Kelley Needham | Chief Executive Officer | $121,104 | 2023-12-31 |
| Patricia Varanese | Executive Director | $20,983 | 2024-08-23 |
| Colleen Saunier | Director of Development | | 2022-06-24 |
| Christine Spradling | Contract Clinical Director | | 2022-06-24 |
| Nicole Richter | Director of Community Programming | | 2022-06-24 |
| ...and 6 more key personnel |
Financials for Epilepsy Association
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $473,424 | $545,700 | -13.2% |
| Program services | $168,257 | $213,923 | -21.3% |
| Investment income and dividends | $26,203 | $21,831 | 20% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $3,540 | $4,152 | -14.7% |
| Net income from fundraising events | $-19,344 | $-38,370 | 49.6% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $652,080 | $747,236 | -12.7% |
Organizations like Epilepsy Association
| Organization | Type | Location | Revenue |
|---|
| Epilepsy Foundation of Colorado | 501(c)(3) | Centennial, CO | $951,288 |
| Parkinson Association of the Rockies | 501(c)(3) | Denver, CO | $1,468,463 |
| Epilepsy Foundation of Texas | 501(c)(3) | Houston, TX | $1,612,999 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
| Epilepsy Association of Western and Central Pa (EFWCP) | 501(c)(3) | Pittsburgh, PA | $1,217,503 |
| Epilepsy Foundation of Connecticut | 501(c)(3) | Middletown, CT | $389,163 |
| The Als Association - Als Association Rocky MTN Chapter | 501(c)(3) | Westminster, CO | $1,227,297 |
| Josh Provides Epilepsy Assistance Foundation | 501(c)(3) | Sarasota, FL | $322,451 |
| Les Turner ALS Foundation | 501(c)(3) | Skokie, IL | $2,682,408 |
| Epilepsy Foundation of East Tennessee | 501(c)(3) | Knoxville, TN | $945,366 |
Data update history
November 4, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 3, 2024
Updated personnel
Identified 2 new personnel
August 25, 2024
Received grants
Identified 3 new grant, including a grant for $10,000 from Ridgecliff Foundation January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 2831 Prospect Ave E
- Cleveland, OH 44115
- Metro area
- Cleveland-Elyria, OH
- County
- Cuyahoga County, OH
- Website URL
- epilepsyinfo.org/Â
- Phone
- (216) 579-1330
IRS details
- EIN
- 23-7198807
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1972
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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