Program areas at Epilepsy Foundation New England
Funding support & donation center: efne's donation center funds efne's mission and supports its advancement of research in Epilepsy. The donation center collects gently used clothing and housewares to be resold. Efne works to showcase advances and raise money for research, in partnership with the Epilepsy Foundation of america. This includes showcasing research in our communication and holding events to engage health care providers, clients, and donors in understanding research in Epilepsy.
Youth services: efne provides 10-12 sleepaway and day camps each year, serving 250-300 participants. Efne's young leaders network engages 525 teens and young adults in skill-building and support through monthly meetings and community service. Participants receive mentoring from staff, volunteers, americorps members, and interns. Young adult retreats provide transition-age youth with community building and skills as they transition to adulthood for 40 people per year. Kids connect builds community and provides recreation for 200+ middle school students. Hundreds of online virtual support groups and meet ups provide support to our youth. Efne's hope lion campaign has reached 800+ families to provide support, education, and community as they move through their journey with Epilepsy.
Resource and support services: efne provides Epilepsy resource rooms in about 12 hospitals across New England. Thousands of clients receive active listening and mentoring, education, and info/referrals. In fiscal year 2023, efne provided one-time grants of $50-$1,000 to 48 families affected by Epilepsy and in financial crisis. Efne provides approximately 50 support groups per month, serving 400-500 people per year. Efne's 12-member volunteer remembrance network provides bereavement support to families who have lost a loved one to Epilepsy. Efne provides educational programs about Epilepsy and seizure first aid to approximately 5,000 people per year, including school children, school personnel, first responders, parents and the general public. We maintain an online knowledge center and resource library.
Grants made by Epilepsy Foundation New England
Who funds Epilepsy Foundation New England
Grants from foundations and other nonprofits
Personnel at Epilepsy Foundation New England
Name | Title | Compensation | Date of data |
---|
Susan Linn | President and Chief Executive Officer | $241,474 | 2023-11-29 |
Joe Siravo | Secretary | $0 | 2023-06-30 |
Bradley Rich | President - Donation Center | $0 | 2023-06-30 |
Andrew Cole | Chair | $0 | 2023-06-30 |
Steve Siravo | Treasurer | $0 | 2023-06-30 |
...and 6 more key personnel |
Financials for Epilepsy Foundation New England
Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
---|
Total grants, contributions, etc. | $2,578,465 | $1,373,063 | 87.8% |
Program services | $3,910,457 | $4,040,716 | -3.2% |
Investment income and dividends | $186,935 | $186,205 | 0.4% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $-130,148 | $-29,868 | -335.7% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $27,746 | $409,926 | -93.2% |
Total revenues | $6,573,455 | $5,980,042 | 9.9% |
Organizations like Epilepsy Foundation New England
Organization | Type | Location | Revenue |
---|
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
Epilepsy Foundation | 501(c)(3) | Bowie, MD | $17,841,214 |
Epilepsy Foundation of Minnesota | 501(c)(3) | Bloomington, MN | $7,765,703 |
GO2 For Lung Cancer (ALCF) | 501(c)(3) | Washington, DC | $12,804,058 |
Epilepsy Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $2,363,979 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
The Epilepsy Institute of Metro Ny (EFMNY) | 501(c)(3) | New York, NY | $1,673,965 |
The ALS Association - ALS Association Golden West Chapter | 501(c)(3) | Woodland Hills, CA | $10,245,280 |
Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
The Als Association - Greater Philadelphia Chapter | 501(c)(3) | Ambler, PA | $5,908,214 |
Data update history
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 17, 2024
Updated personnel
Identified 1 new personnel
January 3, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 650 Suffolk St 405
- Lowell, MA 01854
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Middlesex County, MA
- Website URL
- epilepsynewengland.org/Â
- Phone
- (617) 506-6041
- Facebook page
- EpilepsyNewEnglandÂ
- Twitter profile
- @epilepsyneÂ
IRS details
- EIN
- 22-2505819
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1983
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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