EIN 22-2505819

Epilepsy Foundation New England

IRS 501(c) type
501(c)(3)
Num. employees
100
City
Year formed
1983
Most recent tax filings
2023-06-01
Description
Epilepsy Foundation New England helps individuals and families affected by epilepsy in the region through resource and youth services.
Also known as...
Epilepsy Foundation of Massachusetts and Rhode Island New Hampshire and Maine
Total revenues
$6,573,455
2023
Total expenses
$5,905,898
2023
Total assets
$10,402,302
2023
Num. employees
100
2023

Program areas at Epilepsy Foundation New England

Funding support & donation center: efne's donation center funds efne's mission and supports its advancement of research in Epilepsy. The donation center collects gently used clothing and housewares to be resold. Efne works to showcase advances and raise money for research, in partnership with the Epilepsy Foundation of america. This includes showcasing research in our communication and holding events to engage health care providers, clients, and donors in understanding research in Epilepsy.
Youth services: efne provides 10-12 sleepaway and day camps each year, serving 250-300 participants. Efne's young leaders network engages 525 teens and young adults in skill-building and support through monthly meetings and community service. Participants receive mentoring from staff, volunteers, americorps members, and interns. Young adult retreats provide transition-age youth with community building and skills as they transition to adulthood for 40 people per year. Kids connect builds community and provides recreation for 200+ middle school students. Hundreds of online virtual support groups and meet ups provide support to our youth. Efne's hope lion campaign has reached 800+ families to provide support, education, and community as they move through their journey with Epilepsy.
Resource and support services: efne provides Epilepsy resource rooms in about 12 hospitals across New England. Thousands of clients receive active listening and mentoring, education, and info/referrals. In fiscal year 2023, efne provided one-time grants of $50-$1,000 to 48 families affected by Epilepsy and in financial crisis. Efne provides approximately 50 support groups per month, serving 400-500 people per year. Efne's 12-member volunteer remembrance network provides bereavement support to families who have lost a loved one to Epilepsy. Efne provides educational programs about Epilepsy and seizure first aid to approximately 5,000 people per year, including school children, school personnel, first responders, parents and the general public. We maintain an online knowledge center and resource library.

Grants made by Epilepsy Foundation New England

GranteeGrant descriptionAmount
General Hospital CorporationResearch$75,000
Partners Healthcare System / Brigham & Womens Hospital IncResearch$75,000
Boston Medical Center Corporation (BMC)Research$5,000
...and 1 more grant made

Who funds Epilepsy Foundation New England

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Massachusetts Service AllianceSub-Grant of CNCS Federal Funding Award$54,406
National Philanthropic TrustHealth$34,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$26,733
...and 19 more grants received totalling $186,941

Personnel at Epilepsy Foundation New England

NameTitleCompensation
Susan LinnPresident and Chief Executive Officer$241,474
Joe SiravoSecretary$0
Bradley RichPresident - Donation Center$0
Andrew ColeChair$0
Steve SiravoTreasurer$0
...and 6 more key personnel

Financials for Epilepsy Foundation New England

RevenuesFYE 06/2023
Total grants, contributions, etc.$2,578,465
Program services$3,910,457
Investment income and dividends$186,935
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-130,148
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$27,746
Total revenues$6,573,455

Form 990s for Epilepsy Foundation New England

Fiscal year endingDate received by IRSFormPDF link
2023-062023-11-13990View PDF
2022-062022-11-10990View PDF
2021-062021-11-04990View PDF
2020-062021-02-24990View PDF
2019-062020-01-23990View PDF
...and 9 more Form 990s
Data update history
July 13, 2024
Received grants
Identified 3 new grant, including a grant for $54,406 from Massachusetts Service Alliance
February 3, 2024
Received grants
Identified 2 new grant, including a grant for $7,785 from Givengain Foundation USA
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 17, 2024
Updated personnel
Identified 1 new personnel
January 3, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
650 Suffolk St 405
Lowell, MA 01854
Metro area
Boston-Cambridge-Newton, MA-NH
County
Middlesex County, MA
Website URL
epilepsynewengland.org/ 
Phone
(617) 506-6041
Facebook page
EpilepsyNewEngland 
Twitter profile
@epilepsyne 
IRS details
EIN
22-2505819
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1983
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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