EIN 52-0856660

Epilepsy Foundation

IRS 501(c) type
501(c)(3)
Num. employees
93
City
Year formed
1967
Most recent tax filings
2023-06-01
Description
The mission of the Epilepsy Foundation is to stop seizures and sudep, find a cure and overcome the challenges created by Epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Also known as...
Epilepsy Foundation of America
Total revenues
$17,841,214
2023
Total expenses
$15,981,333
2023
Total assets
$21,649,278
2023
Num. employees
93
2023

Program areas at Epilepsy Foundation

Advocacy and services for individuals, families, and communities - designed to ensure that all people living with Epilepsy and seizure disorders, and thier families and communities, receive the best possible services and care. The Foundation develops nationwide programs available through its network of nearly fifty local Epilepsy foundations and can also be found on epilepsy.com. Programs and initiatives focus on engaging parents, children and adults on improving their quality of life. The Foundation also has programs dedicated to ending early death from Epilepsy and improving overall wellness. The programs are designed to be culturally and ethnically diverse. The Foundation and its grassroots volunteers across the country advocate at the federal and state levels to secure funding for Epilepsy programs.
Research, innovation, and new therapies - accelerates the development of innovative therapies, prevention, and cures for all forms of epilepsies, and seeks to address the gap in the research and commercialization continuum. The main objective is to develop an Epilepsy research ecosystem that covers all parts of therapy, from idea to market. The Foundation's research initiatives include: innovation programs that test new ideas and follow new research leads and engagement programs that improve communication between people with Epilepsy, their families, advocates, researchers, and investors. Digital tools that support research infrastructure. Funding that supports young researchers to bring their ideas to life. Practice solutions to eradicate sudden and unexpected death in Epilepsy (sudep).
Public health, education, and awareness - provides educational and supporting services that create and promote public awareness surrounding Epilepsy. The program utilizes traditional and digital media channels including social media and through the direct mail program which serve the dual purpose of raising funds for the Foundation and increasing awareness of the Foundation's cause. The Foundation educates through engagement with media sources, and partnerships with other non-profits and professional and government organizations. In addition, the Foundation established the Epilepsy learning healthcare system (elhs) network, which is a public health initiative to drive quality health services research to improve medical outcomes for people with Epilepsy.

Grants made by Epilepsy Foundation

GranteeGrant descriptionAmount
Mayo ClinicSeizure Gauge Grant$237,494
American Epilepsy Society (AES)Support A Young Researcher in the Field of Epilepsy$50,000
American Brain FoundationSupport the Clinical Research Training Scholarship$50,000
...and 1 more grant made

Who funds Epilepsy Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Schwab Charitable FundHealth$244,088
American Online Giving FoundationGeneral Support$135,084
Epilepsy Foundation of the Chesapeake RegionScholarships for Individuals$119,270
...and 148 more grants received totalling $1,704,723

Personnel at Epilepsy Foundation

NameTitleCompensation
Bernice Martin LeeChief Executive Officer
Brandy FuremanPresident and Chief Executive Officer$232,853
Rahel RosnerCfoo$269,600
Jacqueline FrenchChief Medical and Innovation Officer
Laura WeidnerChief Advocacy Officer / Vice President Government Relations and Advocacy / Vice President of Government Affairs and Advocacy$185,139
...and 25 more key personnel

Financials for Epilepsy Foundation

RevenuesFYE 06/2023
Total grants, contributions, etc.$18,834,892
Program services$703,581
Investment income and dividends$428,539
Tax-exempt bond proceeds$0
Royalty revenue$1,806
Net rental income$0
Net gain from sale of non-inventory assets$-1,382,706
Net income from fundraising events$-798,448
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$53,550
Total revenues$17,841,214

Form 990s for Epilepsy Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-062024-05-14990View PDF
2022-062023-02-15990View PDF
2021-062022-03-16990View PDF
2021-062022-03-09990View PDF
2020-062021-04-05990View PDF
...and 10 more Form 990s
Data update history
August 25, 2024
Received grants
Identified 26 new grant, including a grant for $135,084 from American Online Giving Foundation
July 21, 2024
Updated personnel
Identified 4 new personnel
July 15, 2024
Updated personnel
Identified 14 new personnel
July 9, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 8, 2024
Used new vendors
Identified 4 new vendors, including , , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsPolitical advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
3540 Crain Hwy 675
Bowie, MD 20716
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Prince George's County, MD
Website URL
epilepsy.com/local/maryland 
Phone
(800) 332-1000
Facebook page
EpilepsyFoundationofAmerica 
Twitter profile
@epilepsyfdn 
IRS details
EIN
52-0856660
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1967
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
017219
FTB Entity ID
1587607
AB 488 data last updated ("as-of") date
2024-11-06
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