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EIN 26-3531031

Familial Dysautonomia Now Foundation FD Now

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Buffalo Grove
State
Illinois
Year formed
2009
Most recent tax filings
2024-07-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
To discover new treatments and cures for patients with Familial Dysautonomia, a rare, fatal, genetic neurological disease present at birth.
Also known as...
Familial Dysautonomia Now Foundation; FD Now
Total revenues
$298,955
2024
Total expenses
$235,102
2024
Total assets
$1,084,316
2024
Num. employees
0
2024

Program areas at Familial Dysautonomia Now Foundation FD Now

To discover new treatments and cures for patients with Familial Dysautonomia, a rare, fatal, genetic neurological disease present at birth

Grants made by Familial Dysautonomia Now Foundation FD Now

GranteeGrant descriptionAmount
Fordham UniversityLab for FD Research$179,280

Who funds Familial Dysautonomia Now Foundation FD Now

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Jewish Communal FundIn Furtherance of Grantee's Tax-Exempt Purpose$19,746
Community Foundation for Greater Buffalo (CFGB)Charitable Support. Any Restrictions Have Been Communicated To the Grantee.$16,100
Daughters of John Whittington FoundationAssistance$250
...and 2 more grants received

Personnel at Familial Dysautonomia Now Foundation FD Now

NameTitleCompensation
Ann SlawPresident$0
Andrea GreenfieldTreasurer$0
Ken SlawVice President$0
Lynn Cabin MstPast Treasurer$0

Financials for Familial Dysautonomia Now Foundation FD Now

RevenuesFYE 07/2024
Total grants, contributions, etc.$249,276
Program services$0
Investment income and dividends$43,115
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$11,258
Net income from fundraising events$-4,694
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$298,955

Form 990s for Familial Dysautonomia Now Foundation FD Now

Fiscal year endingDate received by IRSFormPDF link
2024-072024-12-09990View PDF
2023-072024-01-15990View PDF
2022-072023-01-30990View PDF
2021-072021-12-13990View PDF
2020-072021-04-21990View PDF
...and 10 more Form 990s

Organizations like Familial Dysautonomia Now Foundation FD Now

OrganizationLocationRevenue
Tyler's Hope for Dystonia CureAlachua, FL$437,587
Spina Bifida of Western New YorkMiddleport, NY$110,467
Alliance To Cure Cavernous MalformationsCharlottesville, VA$1,292,022
Lees Cares FoundationLogan, UT$122,821
Epilepsy Foundation of ConnecticutMiddletown, CT$599,324
The Joe Martin ALS FoundationCharlotte, NC$428,645
Crush MSNapa, CA$90,898
MS 4 MSArnold, MD$166,990
Angel FundWakefield, MA$702,162
Wards FoundationCharlotte, NC$521,306
Data update history
January 3, 2025
Received grants
Identified 1 new grant, including a grant for $16,100 from Community Foundation for Greater Buffalo (CFGB)
June 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $19,746 from Jewish Communal Fund
January 1, 2024
Received grants
Identified 1 new grant, including a grant for $25,000 from Foundation for Jewish Philanthropies (FJP)
June 27, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsCorporate foundationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsAuction fundraisersTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
1170 Green Knolls Dr
Buffalo Grove, IL 60089
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Lake County, IL
Website URL
fdnow.org/ 
Phone
(847) 913-0455
IRS details
EIN
26-3531031
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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