| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Northwell Health Foundation | To Assist With the Operating Costs of A Cystic Fibrosis Center at Lenox Hill Hospital in New York That Endeavors To Enhance the Quality of Life of Cystic Fibrosis Patients. | 2024-03 | $250,000 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Fidelity Investments Charitable Gift Fund | 2023-06 | For Grant Recipient's Exempt Purposes | $666,000 |
| Research Fund for Cystic Fibrosis | 2023-12 | Education and Research | $76,636 |
| Research Fund for Cystic Fibrosis | 2023-12 | Education and Research | $68,640 |
| ...and 5 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Jill Dalton | Chief Financial Officer | $0 | 2023-03-31 |
| Gwen Engelhard | President | $0 | 2023-09-11 |
| John Z Jacoby | President Emeritus and Secreta | $0 | 2023-03-31 |
| Marnee McCarthy | Assistant Secretary | $0 | 2023-03-31 |
| Thomas G Leahy | Vice President | $0 | 2023-03-31 |
| ...and 1 more key personnel | |||
| Revenues | FYE 03/2024 |
|---|---|
| Total grants, contributions, etc. | $481,008 |
| Program services | $0 |
| Investment income and dividends | $57,243 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $-41,923 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $1,379 |
| Total revenues | $497,707 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2024-03 | 2024-07-08 | 990 | View PDF |
| 2023-03 | 2023-09-11 | 990 | View PDF |
| 2022-03 | 2022-11-03 | 990 | View PDF |
| 2020-03 | 2021-02-24 | 990 | View PDF |
| 2019-03 | 2020-02-12 | 990 | View PDF |
| ...and 9 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| The Bev Hartig Huntingtons Disease Foundation | 501(c)(3) | Fishers, IN | $295,171 |
| Cerebral Palsy Foundation (CPF) | 501(c)(3) | New York, NY | $2,151,754 |
| Down Syndrome Society of Wichita | 501(c)(3) | Wichita, KS | $223,926 |
| Cystic Fibrosis Research Institute | 501(c)(3) | Palo Alto, CA | $1,350,296 |
| Castleman Disease Collaborative Network | 501(c)(3) | Paso Robles, CA | $898,672 |
| Rare Sisters Batten Foundation | 501(c)(3) | Arvada, CO | $227,631 |
| Walking Strong | 501(c)(3) | Woodland Hills, CA | $495,937 |
| Ups for Downs NFP | 501(c)(3) | Schaumburg, IL | $132,332 |
| The Chris Carrino Foundation for FSHD | 501(c)(3) | Marlboro, NJ | $271,566 |
| Bardet Biedl Syndrome Foundation | 501(c)(3) | West Chester, PA | $372,565 |
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