EIN 93-0995453

Fanconi Cancer Foundation

IRS 501(c) type
501(c)(3)
Num. employees
12
City
State
Year formed
1989
Most recent tax filings
2023-12-01
NTEE code, primary
Description
FA research, grants, registry, and support for families worldwide.
Also known as...
Fanconi Anemia Research Fund
Total revenues
$3,493,638
2023
Total expenses
$4,187,970
2023
Total assets
$7,555,758
2023
Num. employees
12
2023

Program areas at Fanconi Cancer Foundation

Research initiatives - "advances our stand up to Cancer project, awards and manages research grants, manages the virtual tumor board, advances our clinical registry, oversees the Fanconi anemia research materials project, keeps Fanconi anemi guidelines manual up to date, manages Fanconi anemia Cancer consortium, manges Fanconi anemia brush biopsy project, convenes farf sparks meetings, manages friends data commons."
Community programs and support - "onboards newly diagnosed families, manages adult council, manages winn/byrd award, manages international support grant program, manages bereavement support, manages caregiver support, manages peer support, convenes fa connect sessions, manages advocacy and engagement program. "
Events - "annual planning meeting, joel walker series meetings, annual family retreat, scientific symposium, adult fa retreat, international summit, support for farf sparks and fa connect."

Who funds Fanconi Cancer Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Knight FoundationThis Gift Has Been Designated for General Operating Support.$1,000,000
Klimkiewicz Family FoundationFurther Donee's Charitable Purpose.$150,000
Kendall and Taylor Atkinson FoundationTo Support Scientific, Medical, and Treatment Research of Fanconi Anemia and Its Related Cancers and To Provide Education and Support Services To Affected Families.$100,000
...and 37 more grants received totalling $1,585,928

Personnel at Fanconi Cancer Foundation

NameTitleCompensation
Isis SrokaChief Scientific Officer$146,531
Mark QuinlanExecutive Director$168,509
Sherri L van RavenhorstHighest Compensated Employee$102,325
John WagnerBoard Member$0
Pedro RaveloTreasurer$0
...and 9 more key personnel

Financials for Fanconi Cancer Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,189,061
Program services$40,035
Investment income and dividends$208,600
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$54,165
Net income from fundraising events$1,750
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$27
Total revenues$3,493,638

Form 990s for Fanconi Cancer Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-07-30990View PDF
2022-122023-10-23990View PDF
2021-122023-10-20990View PDF
2020-122022-05-26990View PDF
2019-122021-02-17990View PDF
...and 11 more Form 990s
Data update history
September 26, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 22, 2024
Updated personnel
Identified 3 new personnel
August 2, 2024
Received grants
Identified 10 new grant, including a grant for $35,000 from Kevin and Connie Michels Family Foundation
May 17, 2024
Received grants
Identified 1 new grant, including a grant for $1,000 from Giustina Foundation
May 4, 2024
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Provides grantsConducts researchOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
360 E 10th Ave Suite 201
Eugene, OR 97401
Metro area
Eugene-Springfield, OR
County
Lane County, OR
Website URL
fanconi.org/ 
Phone
(541) 687-4658
IRS details
EIN
93-0995453
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1989
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Revoked
AG Registration Number
114004
FTB Entity ID
2345706
AB 488 data last updated ("as-of") date
2024-10-16
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