Program areas at flok Health
Flok Health provides three primary services in the form of websites and apps: howmuchphe.org, cookforlove,org, and the go low pro app. These services allow community members to manage their restrictive diets. Overall user base varies from ~2,000 paying subscribers (how much phe) to 10,000 users registered for free accounts on cook for love, to 1,000 users of the go low pro app.in october 2022, Flok Health began the development of an additional resource for the communtiy in the form of the Flok app and research platform. This resource is not yet publicly available.
Flok Health hosted the annual family camp for those patients with inborn errors of metabolism and their families in june 2022. The camp was both an in-person (Oregon, usa)and virtual event that served a total of 480 individuals and provided 4 days of programming focused on the daily life, known challenges and scientific advances within the inborn errors community.
Flok Health responded to community's requests for support on social media and via email: inquiries about how to find clinics, how to work with food companies, how to find additional resources for Pku support. 10-12 requests/week for a total of 500-750 persons served. Administation of the guthrie-koch scholarship program and advocacy for the community.
Who funds flok Health
Grants from foundations and other nonprofits
Personnel at flok Health
| Name | Title | Compensation | Date of data |
|---|
| Michael Sitler | Chief Technology Officer | | 2024-05-03 |
| Sarah Chamberlin | Executive Director | $111,170 | 2024-05-03 |
| Jeb Haber | President , Board | $0 | 2024-05-03 |
| Glenn Haber | Past Treasurer | $0 | 2024-02-14 |
Financials for flok Health
| Revenues | FYE 03/2023 | FYE 03/2022 | % Change |
|---|
| Total grants, contributions, etc. | $216,530 | $720,712 | -70% |
| Program services | $152,653 | $123,071 | 24% |
| Investment income and dividends | $602 | $589 | 2.2% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $369,785 | $844,372 | -56.2% |
Organizations like flok Health
| Organization | Type | Location | Revenue |
|---|
| Turner Syndrome Society of the United States | 501(c)(3) | Houston, TX | $522,013 |
| XLH Network The XLH Network | 501(c)(3) | Albany, NY | $191,529 |
| United Hemophilia Foundation | 501(c)(3) | Mitchellville, MD | $201,382 |
| Miami Valley Down Syndrome Association | 501(c)(3) | Dayton, OH | $141,282 |
| Down Syndrome Association of Pittsburgh | 501(c)(3) | Pittsburgh, PA | $378,995 |
| Greenville Area Parkinsons Society | 501(c)(3) | Greenville, SC | $160,802 |
| Down Syndrome Assciation of Maryland | 501(c)(3) | Towson, MD | $155,279 |
| Phelan Mcdermid Syndrome Foundation | 501(c)(3) | Osprey, FL | $1,062,761 |
| Congenital Hyperinsulinism International | 501(c)(3) | Glen Ridge, NJ | $1,262,625 |
| Sickle Cell Disease Association of America | 501(c)(3) | Hanover, MD | $1,104,795 |
Data update history
July 12, 2024
Received grants
Identified 1 new grant, including a grant for $42,930 from Pku Hope Foundation June 4, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 22, 2024
Updated personnel
Identified 1 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,619 from AmazonSmile Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesChildrenDiseases and disorders
Characteristics
Conducts researchPartially liquidatedNational levelProvides scholarshipsTax deductible donationsAccepts online donations
General information
- Address
- PO Box 43552
- Montclair, NJ 07043
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- Essex County, NJ
- Website URL
- pkunews.org/Â
- Phone
- (973) 619-9160
IRS details
- EIN
- 94-3098601
- Fiscal year end
- March
- Taxreturn type
- Form 990
- Year formed
- 1989
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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