| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Hemophilia Federation of America (HFA) | 2022-12 | Ed Rap Session - Mesa Redonda Para Padres 12/11/22,ed Session - El Manejo Del Dolor 12/10/22, Got Stress? and Women's Rap Session - Events 7/22/2022,mina Nguyen-Driver, Psyd Two Sessions: Intimacy and Taking Care of You - Event 8/5/2022 | $12,000 |
| Colburn-Keenan Foundation | 2022-12 | Support Activities That Benefit the Bleeding Disorders and Chronic Illness Communities | $7,000 |
| Pharmaceutical Research and Manufacturers of of America (PHRMA) | 2022-12 | General Contribution | $6,500 |
| ...and 1 more grant received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Pepermint Adair | Executive Director | 2024-03-23 | |
| Deborah Adamkin | Past Executive Director | $107,000 | 2022-11-08 |
| Juan Novoa | Director , President | $0 | 2022-12-31 |
| Carlos Moreta | Treasurer Secretary / Secretary and Treasurer / Secretary / Director | $0 | 2022-12-31 |
| Steve Tejiram | Director , Vice President | $0 | 2022-12-31 |
| ...and 7 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $196,668 |
| Program services | $216,937 |
| Investment income and dividends | $22,931 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $436,536 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2024-03-23 | 990 | View PDF |
| 2021-12 | 2022-11-08 | 990 | View PDF |
| 2020-12 | 2021-09-11 | 990 | View PDF |
| 2019-12 | 2021-04-01 | 990 | View PDF |
| 2018-12 | 2020-01-21 | 990 | View PDF |
| ...and 8 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Epilepsy Association | 501(c)(3) | Orlando, FL | $813,501 |
| Epilepsy Services of New Jersey A NJ Nonprofit Corporation | 501(c)(3) | East Windsor, NJ | $600,321 |
| ALS Association Connecticut Chapter | 501(c)(3) | Milford, CT | $1,255,316 |
| The Myasthenia Gravis Association of Western Pennsylvania | 501(c)(3) | Apollo, PA | $142,816 |
| Spina Bifida Association of Kentucky | 501(c)(3) | Louisville, KY | $277,959 |
| Epilepsy Foundation of Northeastern New York | 501(c)(3) | Albany, NY | $996,886 |
| Illinois Spina Bifida Association | 501(c)(3) | Chicago, IL | $282,397 |
| Spina Bifida Association of North Texas | 501(c)(3) | Arlington, TX | $122,995 |
| Epilepsy Foundation of Greater Southern Illinois | 501(c)(3) | Belleville, IL | $2,047,112 |
| The Als Association - Rhode Island Chapter | 501(c)(3) | Warwick, RI | $379,498 |
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