Program areas at Force-Facing Our Risk of Cancer Empowered
Project extra: project extra (expanding xray through alliances) is a project supported by a cooperative agreement through the centers for disease control and prevention. The goal is to improve breast Cancer survivors' access to information, resources and supportive services and address health disparities. Activities include developing culturally-tailored xray articles, providing xray articles and resources into spanish, developing strategies to improve patient-doctor communication, training healthcare professionals and community health workers to recognize and address barriers to health literacy. This grant continues until september 30, 2024.
C. support: force volunteers undergo in-depth training to learn about hereditary Cancer and how to effectively provide support without judgment or advice and advocate for Our community's needs. In 2023, the following support and advocacy programs were available virtually with the assistance of 452 trained volunteers to meet the unique needs of Our community and to ensure no one must face hereditary Cancer alone. 672 constituents were matched to a trained volunteer who shares a similar experience for confidential 1:1 personalized support and a free expert-reviewed resource guide via Our peer navigation program. 123 virtual support meetings were held nationally on zoom throughout the year for Our entire community as well as specific meetings for the following communities (force community, atm, chek2, palb2 & other mutations, caregivers/parents, spanish, lgbtqia+, lynch syndrome, men, people of color, previvors, survivors, young previvors, young survivors) with over 1,200 attendees. Over 13,750 posts were shared on Our private force hereditary Cancer community facebook group and online message boards with peers. 137 helpline calls connected individuals to resources and healthcare professionals. 102 meetings were held with members of congress raising awareness about policies that improve the lives of individuals and families facing hereditary cancers. 77 advocate placements were made to help shape research and improve studies by sharing patient perspectivesprofessionals.
Force's awareness efforts touch the lives of individuals and families facing hereditary breast, colorectal, endometrial, ovarian, pancreatic and prostate Cancer. In 2023, through various efforts such as social media (both organic and paid), google advertising, public relations, partner programs, working with healthcare professionals and health institutions, as well as working with individual constituents to share their personal stories, we drove more than 494,552 visitors to Our website. These people viewed more than 1,448,112 website pages to learn about specific gene mutations that increase Cancer Risk and to understand expert guidelines on screening, prevention and treatment. We increased Our monthly mailing list to 34,283 so that we can keep constituents informed about the latest in hereditary Cancer news, support, research and public policy issues.
General program- $183,402public policy- $236,505education- $515,237research- $133,444general programs includes expenses that span all programs includingsoftware and other items that run Our overall program departments.public policy: force is the only national nonprofit advocating for theunique needs of people with or at increased Risk of hereditary cancers.we work with medical societies and guideline committees to assure thatscreening and prevention guidelines are created or updated to reflectthe needs of those affected by hereditary Cancer. Force hasunparalleled knowledge of insurance coverage and access to care andstrived to improve coverage for the hereditary Cancer community.education: force's education program includes the xray review of cancerresearch that provides reliable information on Cancer research andrelated topics. We look behind the headlines and translate the scienceinto plain language to help people make informed decisions. We alsohave an expert-reviewed database of over 200 pages of information onhereditary Cancer. Force distributes thousands of educational brochuresto healthcare providers, hospitals and individuals each year in englishand spanish.research: Our research search and enroll tool matches people with theresearch studies for whice they qualify. Our targeted researchrecruitment efforts link participants who are the backbone of clinicalresearch to studies enrolling patients. These efforts accelerate critical hereditary Cancer research to improve options and healthoutcomes for Our community. The force research advocate trainingprogram is an online course that prepares consumers to assistresearchers in designing relevant and patient-centered research studieson behalf of the hereditary Cancer community. The program consists ofan expert-led webinar series, supplemental learning, resources andmore.