EIN 82-2661656

Fore Batten Foundation

IRS 501(c) type
501(c)(3)
Num. employees
1
Year formed
2017
Most recent tax filings
2023-12-01
Description
The Fore Batten Foundation aims to educate the public and raise funding for research towards curing rare diseases, including juvenile Batten disease. They fund pioneering research and support the Batten community tirelessly, giving affected children the best possible life and spreading awareness about the need for new treatments. The organization also grants funds to tax-exempt 501(c)(3) organizations that advance their objectives of promoting awareness of Batten disease and creating opportunities for scientists to come together and fund innovation.
Total revenues
$1,550,288
2023
Total expenses
$1,725,984
2023
Total assets
$1,997,270
2023
Num. employees
1
2023

Program areas at Fore Batten Foundation

This organization made grants to several tax-exempt 501(c)(3) organizations that advance the objectives of this organization to promote awareness of Batten disease as well as to promote opportunities for scientists to come together to create and fund innovative research proposals to work toward a cure for Batten disease.
The forebatten Foundation received ind clearance from the food and drug administration to proceed with the clinical investigation for fbf-010 (zebronkysen) paving the way to treat patients with the unique cln3 c.569dupg mutation. Zebronkysen is paving a path towards a better future for newly diagnosed children and will be part of the evolving story of personalized medicine. This effort also provides proof of concept to develop an aso treatment for the common cln3 mutation and creates a roadmap to future treatments.

Grants made by Fore Batten Foundation

GranteeGrant descriptionAmount
SanfordTo Support and Promote the Pursuit of the Highest Caliber, Publishable Research (1) Relating To the Development/delivery of Quality Medical and Health Care Services, (2) Advancing Medical Or Scientific Knowledge and Skills, And/or (3) Benefiting the Education of Health Science Students, Residents, Health Professionals and the General Public$267,850
Washington University in St. Louis (Wash. U)To Support the Research for the Purpose of Discovering and Making Available To the Public New and Improved Medical Procedures and Information$110,990
Rare Sisters Batten FoundationTo Support Other Batten Foundations$80,000
...and 3 more grants made

Who funds Fore Batten Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$45,800
National Christian Foundation / Natl Christian Charitable FDN IncSupport$19,550
The Cleveland FoundationGeneral Support$9,000
...and 1 more grant received

Personnel at Fore Batten Foundation

NameTitleCompensation
Karen KahnFounder and Mom$0
Marlena KahnSecretary$0
Chad McGinnChief Financial Officer and Treasurer$0

Financials for Fore Batten Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,598,358
Program services$0
Investment income and dividends$48,821
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-97,191
Net income from gaming activities$0
Net income from sales of inventory$300
Miscellaneous revenues$0
Total revenues$1,550,288

Form 990s for Fore Batten Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-11-15990View PDF
2021-122022-08-12990View PDF
2020-122021-11-08990View PDF
2019-122021-02-24990View PDF
...and 2 more Form 990s
Data update history
February 7, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 4, 2025
Received grants
Identified 2 new grant, including a grant for $19,550 from National Christian Foundation / Natl Christian Charitable FDN Inc
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 31, 2023
Received grants
Identified 2 new grant, including a grant for $21,600 from Mightycause Charitable Foundation
December 27, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsCorporate foundationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
11312 Us 15-501 N 107-117
Chapel Hill, NC 27517
Metro area
Durham-Chapel Hill, NC
County
Chatham County, NC
Website URL
forebatten.org/ 
Phone
(440) 708-6008
IRS details
EIN
82-2661656
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2017
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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