Program areas at Foundation Fighting Blindness Retinal Degeneration Fund
The three largest program services accomplishments (as measured by expenses) for the Foundation Fighting Blindness Retinal Degeneration Fund (ffb-rdf) during fiscal 2023 were equity investments in opus genetics, perceive bio, and amber bio. Opus genetics and perceive bio are both clinically staged gene therapy companies, and amber bio is a preclinical stage company. Each of these companies is focused on advancing promising therapies for Retinal degenerative diseases.fiscal 2023 summary:ffb-rdf invested an additional $7,000,000 in opus genetics to help advance its pipeline of orphan inherited Retinal disease indications including lca5, best1, rdh12 and mertk. The first patient was dosed in the lca5 phase i/ii clinical trial in august 2023. Ffb-rdf invested $2,564,098 in perceive bio to help advance a clinical-stage complement factor h gene therapy program for the treatment of dry amd, and an early staged dual leucine kinase-dependent inhibitor program aimed at axonal neuroprotection for the treatment of glaucoma and Retinal diseases.ffb-rdf invested $1,800,000 in amber bio to help support the development of an rna editing platform that will be first applied to Retinal degenerative diseases.
Who funds Foundation Fighting Blindness Retinal Degeneration Fund
Grants from foundations and other nonprofits
Personnel at Foundation Fighting Blindness Retinal Degeneration Fund
| Name | Title | Compensation | Date of data |
|---|
| Jason Menzo | Chief Executive Officer | $91,780 | 2024-10-03 |
| Peter Ginsberg | Chief Operating Officer | $66,023 | 2024-10-03 |
| Jeff Klaas | Chief Strategy and Innovation Officer | | 2024-10-03 |
| Judy Taylor | Senior Vice President , Chief Development Officer | | 2024-10-03 |
| Rishi Donat | Chief Human Resources Officer | | 2024-10-03 |
| ...and 17 more key personnel |
Financials for Foundation Fighting Blindness Retinal Degeneration Fund
| Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
|---|
| Total grants, contributions, etc. | $14,920,274 | $15,056,682 | -0.9% |
| Program services | $0 | $25,000 | -100% |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-5,603,437 | $343,292 | -1732.3% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $9,316,837 | $15,424,974 | -39.6% |
Organizations like Foundation Fighting Blindness Retinal Degeneration Fund
| Organization | Type | Location | Revenue |
|---|
| JBI International (JBI) | 501(c)(3) | New York, NY | $2,989,204 |
| SightLife | 501(c)(3) | Tampa, FL | $24,108,233 |
| National Brain Tumor Society (NBTS) | 501(c)(3) | Newton, MA | $13,349,365 |
| Hydrocephalus Association (HA) | 501(c)(3) | Bethesda, MD | $3,628,383 |
| Wills Eye Foundation | 501(c)(3) | Philadelphia, PA | $3,565,068 |
| Brain Injury Association of Massachusetts (BIA-MA) | 501(c)(3) | Westborough, MA | $2,729,362 |
| National Society to Prevent Blindness / Prevent Blindness America | 501(c)(3) | Chicago, IL | $5,068,074 |
| Westmoreland County Blind Association | 501(c)(3) | Greensburg, PA | $5,245,138 |
| Houston Center for Independent Living | 501(c)(3) | Houston, TX | $3,389,239 |
| Brain Injury Alliance of New Jersey (BIANJ) | 501(c)(3) | North Brunswick, NJ | $3,992,899 |
Data update history
October 4, 2024
Updated personnel
Identified 8 new personnel
January 21, 2024
Updated personnel
Identified 4 new personnel
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchOperates internationallyReceives government fundingTax deductible donationsAccepts online donations
General information
- Address
- 6925 Oakland Mills Rd 701
- Columbia, MD 21045
- Metro area
- Baltimore-Columbia-Towson, MD
- County
- Howard County, MD
- Website URL
- retinaldegenerationfund.org/Â
- Phone
- (410) 423-0600
IRS details
- EIN
- 45-0524687
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 2003
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G40: Diseases of Specific Organs
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Subordinate organization
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