EIN 26-3160079

Foundation for Angelman Syndrome Therapeutics

IRS 501(c) type
501(c)(3)
Num. employees
9
City
State
Year formed
2008
Most recent tax filings
2023-12-01
Description
Fast funds research, education, and advocacy to find a cure for Angelman Syndrome and related disorders. Based in Austin, TX.
Also known as...
Cureangelman-Org; FAST and Also
Total revenues
$6,525,815
2023
Total expenses
$23,229,158
2023
Total assets
$58,430,242
2023
Num. employees
9
2023

Program areas at Foundation for Angelman Syndrome Therapeutics

Fast's primary goal is to advance research leading to a cure for as in the form of providing grants to universities to perform research and testing.
As is a rare disorder. The community of parents and caregivers of individuals with as rely heavily on social networking to become informed and seek advice and guidance on the challenges which the disorder presents. It is one of fast's objectives to educate, support, and strengthen this community.

Grants made by Foundation for Angelman Syndrome Therapeutics

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)Upenn 2023: Research, Collaboration & License Agreement$1,853,255
Rush University Medical CenterRush Coe$1,287,600
Boston Children's HospitalFT2022-006: Abom - Natural History Study$458,118
...and 9 more grants made

Who funds Foundation for Angelman Syndrome Therapeutics

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$93,267
American Online Giving FoundationGeneral Support$62,826
Texas Children's Hospital (TCS)General Support$30,000
...and 21 more grants received totalling $324,285

Personnel at Foundation for Angelman Syndrome Therapeutics

NameTitleCompensation
Alana NewhousePresident and Chief Executive Officer$50,000
Ryan K FischerChief Operating Oficer$198,051
Kena RichertBoard Member$188,000
Megan CrossDirector / Chief Information Officer / Communications Officer$0
Allyson BerentChief Science Officer$0
...and 3 more key personnel

Financials for Foundation for Angelman Syndrome Therapeutics

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,866,276
Program services$0
Investment income and dividends$1,969,313
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$765,397
Net income from fundraising events$-91,403
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$16,232
Total revenues$6,525,815

Form 990s for Foundation for Angelman Syndrome Therapeutics

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990View PDF
2022-122023-11-15990View PDF
2021-122022-11-15990View PDF
2020-122021-10-15990View PDF
2019-122021-02-17990View PDF
...and 11 more Form 990s
Data update history
February 16, 2025
Updated personnel
Identified 2 new personnel
February 5, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 5, 2025
Used new vendors
Identified 4 new vendors, including , , , and
October 23, 2024
Received grants
Identified 2 new grant, including a grant for $10,000 from American Endowment Foundation
October 20, 2024
Updated personnel
Identified 7 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsNational levelCommunity engagement / volunteeringGala fundraisersTax deductible donationsAccepts online donations
General information
Address
PO Box 40307
Austin, TX 78704
Metro area
Austin-Round Rock-Georgetown, TX
County
Travis County, TX
Website URL
cureangelman.org/ 
Phone
(866) 783-0078
IRS details
EIN
26-3160079
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0148023
FTB Entity ID
3157966
AB 488 data last updated ("as-of") date
2025-03-05
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