EIN 94-2738019

Foundation for Ichthyosis and Related Skin Types (FIRST)

IRS 501(c) type
501(c)(3)
Num. employees
3
Year formed
1981
Most recent tax filings
2023-09-01
Description
FIRST was established to help individuals and families affected by ichthyosis. Services provided by FIRST include bi-ennial national family conferences, regional meetings, a regional support network, publications, advocacy, and a research program.
Total revenues
$734,946
2023
Total expenses
$756,091
2023
Total assets
$2,074,173
2023
Num. employees
3
2023

Program areas at FIRST

First educates, inspires, and connects families and individuals affected by Ichthyosis and Related Skin Types. First hosts patient support forums and also provides critical information to its members and the general public through its website and calls to its knowledgeable staff. First maintains an active social media presence and facilitates group discussions. First provides accurate, non-biased information on the latest in research, diagnosis, and management of Ichthyosis and Related Skin Types, and critical support to those affected with these genetic conditions and those that care for them.
One of the cornerstones of First is its emphasis on research and its support of the yale Ichthyosis registry both financially and through its promotion accross its communication channels. Critical to improving the management of their condition, participation in the yale registry provides each affected individual a genetic diagnosis of their particular type of Ichthyosis or other Skin type. The registry is also vitally important to the research community and continues to be referenced in numerous studies and manuscripts. The registry also serves to provide research opportunities for training the next generation of physician scientists.

Grants made by FIRST

GranteeGrant descriptionAmount
Yale UniversityResearch Grant$93,500

Who funds Foundation for Ichthyosis and Related Skin Types (FIRST)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$23,418
Foundation for Appalachian OhioGeneral Support$15,000
Schwab Charitable FundHealth$10,600
...and 9 more grants received

Personnel at FIRST

NameTitleCompensation
Christopher BoyntonChief Executive Officer$182,895
Jason ThogmartinChief Financial Officer$0
Lisa BreuningDirector of Operations
Denise GassDirector of Development$0
Christine WasselCommunity Engagement Director
...and 13 more key personnel

Financials for FIRST

RevenuesFYE 09/2023
Total grants, contributions, etc.$676,431
Program services$0
Investment income and dividends$71,603
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-13,088
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$734,946

Form 990s for FIRST

Fiscal year endingDate received by IRSFormPDF link
2023-092024-06-18990View PDF
2022-092023-07-06990View PDF
2021-092022-10-03990View PDF
2021-092022-08-15990View PDF
2020-092022-10-03990View PDF
...and 11 more Form 990s

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International Dyslexia Association (IDA)Pikesville, MD$2,207,902
Schizophrenia & Psychosis ActiAlexandria, VA$1,546,410
The Diabetes LinkBoston, MA$1,771,042
National Center for Learning DisabilitiesWashington, DC$1,255,350
contd Advocacy and Resource NeStanton, KY$365,826
Fundacion Pediatrica de DiabetesSan Juan, PR$559,976
Data update history
November 25, 2024
Updated personnel
Identified 5 new personnel
October 19, 2024
Received grants
Identified 2 new grant, including a grant for $15,000 from Foundation for Appalachian Ohio
August 18, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 15, 2024
Received grants
Identified 1 new grant, including a grant for $6,014 from Billie Gaskill Irrevocable Trust 41a469018
May 18, 2024
Received grants
Identified 2 new grant, including a grant for $23,418 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchNational levelEndowed supportGala fundraisersTax deductible donationsAccepts online donations
General information
Address
PO Box 1067
Lansdale, PA 19446
Metro area
Philadelphia-Camden-Wilmington, PA-NJ-DE-MD
County
Montgomery County, PA
Website URL
firstskinfoundation.org/ 
Phone
(215) 997-9400
Facebook page
FoundationforIchthyosis 
Twitter profile
@first_skin 
IRS details
EIN
94-2738019
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1981
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
042550
FTB Entity ID
1013847
AB 488 data last updated ("as-of") date
2024-12-31
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