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EIN 31-1763110

Foundation for Prader Willi Research (FPWR)

IRS 501(c) type
501(c)(3)
Num. employees
16
City
Covina
State
California
Year formed
2001
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder.
Also known as...
Foundation for Prader-Willi Researchinc
Total revenues
$6,535,580
2023
Total expenses
$6,352,142
2023
Total assets
$9,519,457
2023
Num. employees
16
2023

Program areas at FPWR

Through the implementation of translational Research programs, the management of a world-class grants program, and the development of prader willi syndrome (pws) Research tools, the Foundation for Prader-Willi Research (fpwr) advances Research in order to develop new treatments for pws and improve the health and well-being of those with pws. Under the guidance of our scientific advisory board through a carefully managed grants process, fpwr selects Research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with pws and their families.

Grants made by FPWR

GranteeGrant descriptionAmount
Maimonides Medical CenterResearch$165,148
The Rockefeller UniversityResearch$162,000
Duke UniversityResearch$162,000
...and 16 more grants made

Who funds Foundation for Prader Willi Research (FPWR)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,514,300
Goldman Sachs GivesMedical/scientific Research & Programs$61,000
American Online Giving FoundationGeneral Support$55,583
...and 29 more grants received totalling $1,933,821

Personnel at FPWR

NameTitleCompensation
Susan HedstromExecutive Director$73,353
Theresa V. Strong, Ph.D.Director of Research Programs$158,830
Lisa Cole Burnett, Ph.D.Director of Translational Research
Amber RobersonSecretary$0
Paul WissmannPresident$0
...and 7 more key personnel

Financials for FPWR

RevenuesFYE 12/2023
Total grants, contributions, etc.$5,653,599
Program services$229,189
Investment income and dividends$219,505
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$74,920
Net income from fundraising events$349,960
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$8,407
Total revenues$6,535,580

Form 990s for FPWR

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-07990View PDF
2022-122023-11-15990View PDF
2021-122022-10-24990View PDF
2020-122021-11-12990View PDF
2019-122021-04-02990View PDF
...and 10 more Form 990s
Data update history
November 26, 2024
Received grants
Identified 5 new grant, including a grant for $20,000 from Communities of Coastal Georgia Foundation
October 18, 2024
Updated personnel
Identified 3 new personnel
September 21, 2024
Received grants
Identified 4 new grant, including a grant for $49,814 from The Blackbaud Giving Fund
July 11, 2024
Used new vendors
Identified 2 new vendors, including , and
July 9, 2024
Received grants
Identified 1 new grant, including a grant for $12,480 from Donna and Stuart Farber Family Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelTax deductible donationsAccepts online donations
General information
Address
440 N Barranca Ave 3620
Covina, CA 91723
Metro area
Los Angeles-Long Beach-Anaheim, CA
County
Los Angeles County, CA
Website URL
fpwr.org/ 
Phone
(888) 322-5487
Twitter profile
@fpwr 
IRS details
EIN
31-1763110
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2001
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Not revoked
AG Registration Number
125089
FTB Entity ID
3035979
AB 488 data last updated ("as-of") date
2025-01-15
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