EIN 71-0874241

Foundation to Eradicate Duchenne

Name: Foundation to Eradicate Duchenne financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Alexandria

State

Virginia

Year formed

2002

Most recent tax filings

2022-12-01

NTEE code, primary

G20: Birth Defects and Genetic Diseases

Description

Foundation to Eradicate Duchenne funds aggressive research into treatments for Duchenne Muscular Dystrophy, awards research grants totaling $519,194 in 2022 to develop potential therapies targeting the genetic flaw of this catastrophic disease in hopes of finding a cure.

Total revenues

$777,073

2022

Total expenses

$764,044

2022

Total assets

$837,468

2022

Num. employees

2022

Program areas at Foundation to Eradicate Duchenne

The organization awarded research grants in the amount of $519,194 during 2022. These grants were awarded To fund the development of potential therapies for Duchenne muscular dystrophy utilizing strategies designed To repair the genetic flaw of this catastrophic, single-gene-defect disorder; support academic research institutions in efforts To bring therapies To the marketplace that would compensate for the lack of a protein essential in muscle regeneration and repair; and fund scientific workshops for leading muscle researchers and clinicians To effectively collaborate on strategies for translation approaches To muscular dystrophy.

Grants made by Foundation to Eradicate Duchenne

Grantee	Grant description	Grant year	Amount
Children's National Research Institute (CNHS)	To Fund Research for Treatment of Duchenne Muscular Dystrophy	2022-12	$204,849
Binghamton University Foundation	To Fund Research for Treatment of Duchenne Muscular Dystrophy	2022-12	$98,835
Parent Project Muscular Dystrophy (PPMD)	To Fund Research for Treatment of Duchenne Muscular Dystrophy	2022-12	$50,000

Who funds Foundation to Eradicate Duchenne

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
Council of Insurance Agents and Brokers	2022-12	Charitable Donation	$50,000
Foxhedge Charitable Foundation	2023-12	Cash Grant	$10,000
United States Telecom Association (USTelecom)	2022-12	Program Support	$10,000
...and 8 more grants received

Personnel at Foundation to Eradicate Duchenne

Name	Title	Compensation	Date of data
Joel Wood	President and Chairman	$0	2022-12-31
James Wood	Treasurer	$0	2023-11-07
Scott Sinder	Secretary	$0	2022-12-31

Financials for Foundation to Eradicate Duchenne

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$805,428	$809,683	-0.5%
Program services	$0	$0	-
Investment income and dividends	$1,809	$226	700.4%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$-134,106	$0	-999%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$103,942	$111,785	-7%
Total revenues	$777,073	$921,694	-15.7%

Form 990s for Foundation to Eradicate Duchenne

Fiscal year ending	Date received by IRS	Form	PDF link
2022-12	2023-11-07	990	View PDF
2021-12	2022-11-15	990	View PDF
2020-12	2021-11-11	990	View PDF
2019-12	2021-04-02	990	View PDF
2018-12	2020-02-06	990	View PDF
...and 8 more Form 990s

Organizations like Foundation to Eradicate Duchenne

Organization	Type	Location	Revenue
New England Hemophilia Association	501(c)(3)	Dedham, MA	$1,196,989
International FOP Association	501(c)(3)	North Kansas City, MO	$3,050,181
Global Down Syndrome Foundation	501(c)(3)	Denver, CO	$3,826,365
National Down Syndrome Society (NDSS)	501(c)(3)	Washington, DC	$3,354,289
Phelan Mcdermid Syndrome Foundation	501(c)(3)	Osprey, FL	$1,062,761
STXBP1 Foundation	501(c)(3)	Holly Springs, NC	$1,830,890
The Little Baby Face Foundation	501(c)(3)	New York, NY	$584,172
CACNA1A Foundation	501(c)(3)	Norwalk, CT	$385,860
Bardet Biedl Syndrome Foundation	501(c)(3)	West Chester, PA	$372,565
The Bev Hartig Huntingtons Disease Foundation	501(c)(3)	Fishers, IN	$295,171

Data update history

May 18, 2024

Received grants

Identified 5 new grant, including a grant for $50,000 from Council of Insurance Agents and Brokers

January 20, 2024

Posted financials

Added Form 990 for fiscal year 2022

December 30, 2023

Used new vendors

Identified 2 new vendors, including , and

December 23, 2023

Received grants

Identified 1 new grant, including a grant for $1,000 from The H-M Foundation

July 29, 2023

Posted financials

Added Form 990 for fiscal year 2021

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Provides grantsConducts researchLobbyingFundraising eventsNational levelTax deductible donationsNo full-time employeesAccepts online donations

General information

Address: PO Box 2371; Alexandria, VA 22301
Metro area: Washington-Arlington-Alexandria, DC-VA-MD-WV
County: Alexandria city, VA
Website URL: duchennemd.org/
Phone: (703) 683-7500

IRS details

EIN: 71-0874241
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 2002
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G20: Birth Defects and Genetic Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

Blog articles

Free account sign-up

Want updates when Foundation to Eradicate Duchenne has new information, or want to find more organizations like Foundation to Eradicate Duchenne?

Create free Cause IQ account

Foundation to Eradicate Duchenne

Program areas at Foundation to Eradicate Duchenne

Grants made by Foundation to Eradicate Duchenne

Who funds Foundation to Eradicate Duchenne

Personnel at Foundation to Eradicate Duchenne

Financials for Foundation to Eradicate Duchenne

Form 990s for Foundation to Eradicate Duchenne

Organizations like Foundation to Eradicate Duchenne

Nonprofits

Product

Customers

About