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EIN 04-3222167

FRAXA Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Newburyport
State
Massachusetts
Year formed
1994
Most recent tax filings
2023-12-01
NTEE code, primary
H30: Cancer Research
Description
The FRAXA Research Foundation aims to discover effective treatments and a cure for Fragile X syndrome through direct funding of grant research. It funds programs that educate the public about the condition.
Total revenues
$2,044,969
2023
Total expenses
$1,804,308
2023
Total assets
$3,961,307
2023
Num. employees
3
2023

Program areas at FRAXA Research Foundation

To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X.
To fund programs for the purpose of educating the general public about Fragile X.

Grants made by FRAXA Research Foundation

GranteeGrant descriptionAmount
UMass Memorial Health Care (UMMHC)Research$100,000
Yale UniversityResearch$100,000
Cold Spring Harbor LaboratoryResearch$50,000
...and 9 more grants made

Who funds FRAXA Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Robert and Ardis James FoundationGeneral & Unrestricted$110,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$85,880
Bny Mellon Charitable Gift FundTo Further the Organization's Exempt Purpose$50,000
...and 33 more grants received totalling $507,807

Personnel at FRAXA Research Foundation

NameTitleCompensation
Katherine ClappPresident$143,606
Michael Tranfaglia, MDMedical Director , Treasurer , Founder$132,971
Holly RoosCommunity Services Director
Deborah StevensonBoard Chair$0

Financials for FRAXA Research Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,890,692
Program services$0
Investment income and dividends$98,585
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-3,831
Net income from fundraising events$44,523
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$15,000
Total revenues$2,044,969

Form 990s for FRAXA Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-13990View PDF
2022-122023-05-12990View PDF
2021-122022-06-14990View PDF
2020-122021-08-09990View PDF
2019-122020-10-16990View PDF
...and 11 more Form 990s
Data update history
September 24, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 25, 2024
Received grants
Identified 11 new grant, including a grant for $50,000 from Bny Mellon Charitable Gift Fund
May 18, 2024
Received grants
Identified 4 new grant, including a grant for $17,285 from American Online Giving Foundation
January 29, 2024
Updated personnel
Identified 1 new personnel
January 2, 2024
Received grants
Identified 6 new grant, including a grant for $110,000 from Robert and Ardis James Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsNational levelTax deductible donationsAccepts online donations
General information
Address
10 Prince Pl
Newburyport, MA 01950
Metro area
Boston-Cambridge-Newton, MA-NH
County
Essex County, MA
Website URL
fraxa.org/ 
Phone
(978) 462-1866
IRS details
EIN
04-3222167
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1994
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
126745
FTB Entity ID
2676231
AB 488 data last updated ("as-of") date
2024-10-16
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