Program areas at Genetic Alliance
Genetic Alliance provides interactive tools to create, manage and disseminate information to educate individuals, families and communities. The goal of this work is empowering individuals through genetics and genomics to take charge of their health.
Genetic Alliance endeaors to diagnose the wrold's under-resourced undiagnosed and to provide the with the support they need. Genetic Alliance privdes labs with instruments and reagents. Individua control access to their data.
Translational research endeavors of Genetic Alliance include the Genetic Alliance registry and biobank, a cross disease clinical data and biological sample repository. This area also includes programs to examine the readiness of genomic applications' integration into health.
Who funds Genetic Alliance
Grants from foundations and other nonprofits
Personnel at Genetic Alliance
| Name | Title | Compensation | Date of data |
|---|
| Sharon Terry | President and Chief Executive Officer | $93,563 | 2023-08-08 |
| Ruth Child | Chief Financial Officer | | 2023-01-24 |
| Natasha Bonhomme | Chief Strategy Officer | $167,000 | 2023-01-24 |
| Susan McClure | Vice President, Outreach and Growth | | 2023-01-24 |
| Ryan J. Taft, PhD | Vice President, Scientific Research | $0 | 2023-01-24 |
| ...and 9 more key personnel |
Financials for Genetic Alliance
| Revenues | FYE 09/2022 | FYE 09/2021 | % Change |
|---|
| Total grants, contributions, etc. | $1,611,061 | $1,158,432 | 39.1% |
| Program services | $1,629,816 | $1,172,353 | 39% |
| Investment income and dividends | $27 | $45 | -40% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $100 | $203 | -50.7% |
| Total revenues | $3,241,004 | $2,331,033 | 39% |
Organizations like Genetic Alliance
| Organization | Type | Location | Revenue |
|---|
| Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) | 501(c)(3) | Saint Paul, MN | $2,723,302 |
| Autistic Self Advocacy Network | 501(c)(3) | Washington, DC | $3,417,478 |
| Tag Treatment Action Group (TAG) | 501(c)(3) | New York, NY | $2,911,955 |
| Safe States Alliance | 501(c)(3) | Atlanta, GA | $2,685,287 |
| NAASO The Obesity Society | 501(c)(3) | Rockville, MD | $2,239,725 |
| Brain Injury Association of New York State (BIANYS) | 501(c)(3) | Albany, NY | $1,235,051 |
| Connecticut Harm Reduction Alliance | 501(c)(3) | Hartford, CT | $2,010,813 |
| Vermont Cares | 501(c)(3) | Burlington, VT | $1,143,619 |
| Aids Vaccine Advocacy Coalition (AVAC) | 501(c)(3) | New York, NY | $14,790,975 |
| Phelan Mcdermid Syndrome Foundation | 501(c)(3) | Osprey, FL | $1,062,761 |
Data update history
October 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 21, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Social advocacy organizationsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyReceives government fundingTax deductible donationsAccepts online donations
General information
- Address
- 26400 Woodfield Rd 189
- Damascus, MD 20872
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Montgomery County, MD
- Website URL
- geneticalliance.org/Â
- Phone
- (202) 966-5557
- Facebook page
- GeneticAllianceÂ
- Twitter profile
- @geneticallianceÂ
IRS details
- EIN
- 52-1571905
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1986
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813319: Social Advocacy Organizations
- Parent/child status
- Independent
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