EIN 45-3689316

Team Gleason Foundation

IRS 501(c) type
501(c)(3)
Num. employees
21
Year formed
2011
Most recent tax filings
2022-12-01
Description
The Team Gleason Foundation helps provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services. They raise public awareness towards amyotrophic lateral sclerosis by providing and documenting life adventures for individuals with muscle degeneration. The foundation delivers leading edge equipment, services, and technology to give ALS patients the ability to communicate, interact, and live with purpose. The advancements in technology and equipment have allowed for greater independence for people living with ALS.
Also known as...
Gleason Initiative Foundation
Total revenues
$4,285,841
2022
Total expenses
$4,238,018
2022
Total assets
$8,266,292
2022
Num. employees
21
2022

Program areas at Team Gleason Foundation

Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2022, the approximate value of such equipment repurposed was $1,800,000. In addition, Voice Banking technology was provided to 970 patients valued at $1,550,000 and seat elevators were provided to 1,250 patients.Team Gleason was voted "Best Non-profit" in Gambit's 2022 Best of New Orleans issue.Team Gleason partnered with Synchron, an endovascular brain computer interface company, to provide patient-focused feedback on their platform to transform daily life for patients with physical and speech disabilities like ALS, muscular dystrophy, and cerebral palsy. Through Team Gleason's community of ALS patients, caregivers, clinicians and technology specialists, provided Synchron access to user research, including feedback on the Stentrode Systems current overall design for patients and caregivers.Team Gleason teamed up with Comcast to drive inclusive innovation to improve the independence and quality of life for people with physical and speech disabilities, including those living with ALS. Together, Comcast and Team Gleason are actively engaged with people with ALS (pALS) and caregivers, as well as preeminent clinicians, technologists and assistive technology partners to define and develop accessible, empowering experiences from TV control to smart home solutions and beyond.Innovation through Collaboration Accessibility Roundtable - Team Gleason hosted the Innovation through Collaboration Accessibility Roundtable to accelerate the development of quality of life improving technologies for people living with ALS by catalyzing collaborations between great people and great companies. Industry attendence included Google, Microsoft, Comcast, and Amazon.Team Gleason held a major presence at the ASHA (American Speech-Language-Hearing Association) 2022 Conference hosted in New Orleans where there was a recreation of the Team Gleason Assistive Technology Lab. Steve and Michel Gleason were also awarded the prestigious Annie Glenn Award at the conference for the positive impact that Team Gleason has had on the lives of people with communication disorders.

Grants made by Team Gleason Foundation

GranteeGrant descriptionAmount
Boston Children's HospitalGeneral Exempt Purpose$0

Who funds Team Gleason Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$399,250
The Greater New Orleans FoundationFund Raising & Fund Distribution$156,998
Leandro P. Rizzuto FoundationTo Assist People With Als and Their Families.$100,000
...and 53 more grants received totalling $1,298,608

Personnel at Team Gleason Foundation

NameTitleCompensation
Sally CoxChief of Staff
Michel VariscoCo - Founder and Merchandise
Steve GleasonCo - Founder
Blair CaseyExecutive Director$119,746
David DarraghManaging Director$121,458
...and 7 more key personnel

Financials for Team Gleason Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$2,925,992
Program services$0
Investment income and dividends$94,259
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-72,927
Net income from fundraising events$1,338,517
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,285,841

Form 990s for Team Gleason Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122024-01-29990View PDF
2021-122022-10-11990View PDF
2020-122021-11-04990View PDF
2019-122021-02-18990View PDF
2018-122019-10-10990View PDF
...and 7 more Form 990s
Data update history
September 21, 2024
Received grants
Identified 16 new grant, including a grant for $100,000 from Leandro P. Rizzuto Foundation
June 13, 2024
Updated personnel
Identified 5 new personnel
June 4, 2024
Posted financials
Added Form 990 for fiscal year 2022
May 22, 2024
Updated personnel
Identified 2 new personnel
May 18, 2024
Received grants
Identified 5 new grant, including a grant for $74,994 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsEndowed supportFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
2021 Lakeshore Dr 120
New Orleans, LA 70122
Metro area
New Orleans-Metairie, LA
County
Orleans Parish, LA
Website URL
teamgleason.org/board-of-directors/ 
Phone
(504) 934-1037
IRS details
EIN
45-3689316
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2011
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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