Program areas at Team Gleason Foundation
Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2022, the approximate value of such equipment repurposed was $1,800,000. In addition, Voice Banking technology was provided to 970 patients valued at $1,550,000 and seat elevators were provided to 1,250 patients.Team Gleason was voted "Best Non-profit" in Gambit's 2022 Best of New Orleans issue.Team Gleason partnered with Synchron, an endovascular brain computer interface company, to provide patient-focused feedback on their platform to transform daily life for patients with physical and speech disabilities like ALS, muscular dystrophy, and cerebral palsy. Through Team Gleason's community of ALS patients, caregivers, clinicians and technology specialists, provided Synchron access to user research, including feedback on the Stentrode Systems current overall design for patients and caregivers.Team Gleason teamed up with Comcast to drive inclusive innovation to improve the independence and quality of life for people with physical and speech disabilities, including those living with ALS. Together, Comcast and Team Gleason are actively engaged with people with ALS (pALS) and caregivers, as well as preeminent clinicians, technologists and assistive technology partners to define and develop accessible, empowering experiences from TV control to smart home solutions and beyond.Innovation through Collaboration Accessibility Roundtable - Team Gleason hosted the Innovation through Collaboration Accessibility Roundtable to accelerate the development of quality of life improving technologies for people living with ALS by catalyzing collaborations between great people and great companies. Industry attendence included Google, Microsoft, Comcast, and Amazon.Team Gleason held a major presence at the ASHA (American Speech-Language-Hearing Association) 2022 Conference hosted in New Orleans where there was a recreation of the Team Gleason Assistive Technology Lab. Steve and Michel Gleason were also awarded the prestigious Annie Glenn Award at the conference for the positive impact that Team Gleason has had on the lives of people with communication disorders.
Grants made by Team Gleason Foundation
Who funds Team Gleason Foundation
Grants from foundations and other nonprofits
Personnel at Team Gleason Foundation
Name | Title | Compensation | Date of data |
---|
Sally Cox | Chief of Staff | | 2024-06-13 |
Michel Varisco | Co - Founder and Merchandise | | 2024-06-13 |
Steve Gleason | Co - Founder | | 2024-06-13 |
Blair Casey | Executive Director | $119,746 | 2024-06-13 |
David Darragh | Managing Director | $121,458 | 2024-06-13 |
...and 7 more key personnel |
Financials for Team Gleason Foundation
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $2,925,992 | $2,235,521 | 30.9% |
Program services | $0 | $50,000 | -100% |
Investment income and dividends | $94,259 | $124,142 | -24.1% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-72,927 | $351,922 | -120.7% |
Net income from fundraising events | $1,338,517 | $695,861 | 92.4% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $21,103 | -100% |
Total revenues | $4,285,841 | $3,478,549 | 23.2% |
Organizations like Team Gleason Foundation
Organization | Type | Location | Revenue |
---|
Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $6,573,455 |
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
Epilepsy Foundation of Texas | 501(c)(3) | Houston, TX | $1,612,999 |
GO2 For Lung Cancer (ALCF) | 501(c)(3) | Washington, DC | $12,804,058 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
The ALS Association - ALS Association of Georgia | 501(c)(3) | Sandy Springs, GA | $1,402,242 |
Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
Epilepsy Foundation | 501(c)(3) | Bowie, MD | $17,841,214 |
Data update history
June 13, 2024
Updated personnel
Identified 5 new personnel
June 4, 2024
Posted financials
Added Form 990 for fiscal year 2022
May 22, 2024
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsEndowed supportFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 2021 Lakeshore Dr 120
- New Orleans, LA 70122
- Metro area
- New Orleans-Metairie, LA
- County
- Orleans Parish, LA
- Website URL
- teamgleason.org/board-of-directors/Â
- Phone
- (504) 934-1037
IRS details
- EIN
- 45-3689316
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2011
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
Free account sign-up
Want updates when Team Gleason Foundation has new information, or want to find more organizations like Team Gleason Foundation?
Create free Cause IQ account