Program areas at Global Genes
Global Genes' programs provide next-generation patient advocates with a continuum of services to accelerate their path from early support and awareness through research readiness, using a collaborative approach that involves biopharma, researchers and funders, with data as a central core. We aim to have a significant impact on the lives of people living with rare diseases by bringing the community together around our three pillars of support, education, and research, while weaving health equity through all of our initiatives to foster a culture of inclusion. Our programs are designed to help our participants develop the skills they seek to build organizations, become research ready, and pursue the development of treatments.
Grants made by Global Genes
Who funds Global Genes
Grants from foundations and other nonprofits
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|
| Silicon Valley Community Foundation (SVCF) | 2022-12 | Health | $200,000 |
| The Alexion Charitable Foundation | 2023-12 | Grant Will Support the Project Titled Rare Mental Health Impact Grants Program Which Provides An Opportunity for Foundation Leaders To Apply for Grants To Assist in Creating Programs, Educational Tools/materials, and Support Networks To Address Unmet Mental Health and Social Support Needs of Their Community. the Goal of the Impact Grants Program Is To Equip Patient Communities To Expand Availability and Effectiveness of Tools and Capabilities That Address Critical Mental Health Needs. A Secondary Goal Is To Utilize, Promote and Make Available the Outputs From the Grant-Funded Projects To the Larger Rare Community. | $165,000 |
| Project 8P Foundation | 2022-12 | Data Collection & Biorepository | $100,000 |
| ...and 5 more grants received |
Personnel at Global Genes
| Name | Title | Compensation | Date of data |
|---|
| Charlene Son Rigby | Chief Executive Officer | | 2024-08-06 |
| Simon Frost | Chief Executive Officer , Tiber Capital Group | | 2024-08-06 |
| Ram Lyer | Chief Data Officer | | 2024-04-19 |
| Pam Ferris | Vice President Development and Marketing | $231,888 | 2021-12-31 |
| Christain Rubio | Vice President Strategic Advancement | $199,583 | 2021-12-31 |
| ...and 40 more key personnel |
Financials for Global Genes
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $6,410,826 | $3,865,176 | 65.9% |
| Program services | $2,055,089 | $1,690,520 | 21.6% |
| Investment income and dividends | $3,487 | $1,597 | 118.3% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $142 | -100% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $8,469,402 | $5,557,435 | 52.4% |
Organizations like Global Genes
| Organization | Type | Location | Revenue |
|---|
| Association for Frontotemporal Degeneration (AFTD) | 501(c)(3) | King of Prussia, PA | $8,537,416 |
| Children's Tumor Foundation | 501(c)(3) | New York, NY | $16,990,325 |
| Parent Project Muscular Dystrophy (PPMD) | 501(c)(3) | Washington, DC | $13,881,085 |
| Cerebral Palsy Alliance Research Foundation | 501(c)(3) | New York, NY | $2,402,103 |
| International FOP Association | 501(c)(3) | North Kansas City, MO | $3,050,181 |
| Osteogenesis Imperfecta Foundation | 501(c)(3) | Gaithersburg, MD | $2,214,512 |
| MiracleFeet | 501(c)(3) | Chapel Hill, NC | $14,252,327 |
| Emily's Entourage | 501(c)(3) | Ardmore, PA | $2,799,957 |
| Huntington's Disease Society of America (HDSA) | 501(c)(3) | New York, NY | $10,709,965 |
| Cerebral Palsy Associations of New York | 501(c)(3) | Cohoes, NY | $3,054,217 |
Data update history
October 21, 2024
Used new vendors
Identified 3 new vendors, including , , and
August 6, 2024
Updated personnel
Identified 1 new personnel
April 20, 2024
Updated personnel
Identified 5 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsConducts researchOperates internationallyTax deductible donationsAccepts online donations
General information
- Address
- 1012 14th St NW Suite 500
- Washington, DC 20005
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- District of Columbia, DC
- Website URL
- globalgenes.org/
- Phone
- (949) 248-7273
- Facebook page
- globalgenes
- Twitter profile
- @globalgenes
IRS details
- EIN
- 26-3331487
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2008
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - In Process
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0198472
- FTB Entity ID
- 3159463
- AB 488 data last updated ("as-of") date
- 2024-10-16
Free account sign-up
Want updates when Global Genes has new information, or want to find more organizations like Global Genes?
Create free Cause IQ account