HD Reach

Access to Care program - to facilitate entry to medical Care by performing needs assessment, referral to appropriate source of help, follow up on treatment plan developed during HD clinics, and offer support to home-bound families. Served 301 persons in 2023. Included crisis intervention, referral to appropriate source of medical Care or resources and telephone support.

Education - programs- families to educate families about the new initiatives in HD research, to educate about nc-cchd programs, to detail resources available to patients and families, and to create opportunities for HD families to meet and learn from each other. Served 320 persons in 2023 and held 7 support group meetings. Activities include website development, support group participation and an annual family education day.

Outreach program - to increase awareness in nc HD patients and families of help and medical Care available to them. To increase awareness of HD in the general community, with health Care providers and health Care facilities,the government and other charitable organizations. Creating partnerships with existing programs that provide services needed by HD families. Served 49,819 persons in 2023.

Education program - health Care professionals - to improve knowledge and medical Care of Huntington's Disease: its diagnosis, treatment, and on- going and future research findings, and create a meeting forum for knowledge exchange.