Program areas at Project Lyme
Education and awareness: education, awareness, and advocacy are Project Lyme's three largest initiatives from an employment and public engagement standpoint. These funds are split between funding the distribution of documentary film the quiet epidemic, creating social media and website content for @projectlyme and projectlyme.org, creating and distributing public service annoucements, as well as sponsorship online and in-person educational seminars and advocacy events. We distributed $47,500 to the quiet epidemic, $14,824 to generation Lyme, $5,000 to ilads and other minor grants to organizations working in education and awareness.
Research: Project Lyme directs funds for research through our partner organization bay area Lyme foundation. The main focus of this program is to increase the viability of diagnostics available to the general public and therapeutics available for patients. We distributed $222,000 to bay area Lyme.
Grants made by Project Lyme
Who funds Project Lyme
Grants from foundations and other nonprofits
Personnel at Project Lyme
| Name | Title | Compensation | Date of data |
|---|
| Noah Johnston | Director | $120,000 | 2024-09-26 |
| Jennifer Hoffmann | Programming Director | | 2022-05-07 |
| Davia Sills | Marketing Manager | | 2024-09-26 |
| David Roth | Executive Committee Chair | $0 | 2024-09-26 |
| Scott Moresco | Treasurer | $0 | 2024-09-26 |
| ...and 3 more key personnel |
Financials for Project Lyme
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,214,964 | $929,174 | 30.8% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $73 | $0 | 999% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-232,586 | $-138,518 | -67.9% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $326 | -100% |
| Total revenues | $982,451 | $790,982 | 24.2% |
Organizations like Project Lyme
| Organization | Type | Location | Revenue |
|---|
| The Calliope Joy Foundation | 501(c)(3) | Bala Cynwyd, PA | $447,670 |
| Parkinsons Association of Alabama | 501(c)(3) | Birmingham, AL | $3,100,071 |
| Bay Area Lyme Foundation | 501(c)(3) | Portola Valley, CA | $3,112,927 |
| National MPS Society | 501(c)(3) | Durham, NC | $2,296,659 |
| Connecting to Cure Crohn's and Colitis | 501(c)(3) | Beverly Hills, CA | $290,791 |
| The International Waldenstrom's Macroglobulinemia Foundation | 501(c)(3) | Sarasota, FL | $3,292,131 |
| The Parkinson Council | 501(c)(3) | Philadelphia, PA | $614,637 |
| The Amyloidosis Foundation | 501(c)(3) | Clarkston, MI | $710,435 |
| Cure HHT | 501(c)(3) | Monkton, MD | $3,740,865 |
| Schizophrenia & Psychosis Acti | 501(c)(3) | Alexandria, VA | $1,546,410 |
Data update history
September 26, 2024
Updated personnel
Identified 2 new personnel
August 17, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 11, 2024
Updated personnel
Identified 4 new personnel
August 10, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsGala fundraisersTax deductible donationsAccepts online donations
General information
- Address
- 229 E 85th St Suite 38
- New York, NY 10028
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- projectlyme.org/Â
- Phone
- (207) 370-9313
IRS details
- EIN
- 81-1138289
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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