Program areas at Hemophilia Council of California
Education - this includes policy and advocacy webinars, chapter presentations, andfuture leaders programs to educate our legislators and the public on the importance of Hemophilia care both for the bleeding disorders community and the greater community. Hcc supports and encourages all patients with bleeding disorders to seek the expert care of trained professionals at the Hemophilia treatment centers throughout the state. Hcc also supports choice of treatment and providers, and educates the Hemophilia community on the range of options for treatment.
Healthcare access forum - this is a quarterly bleeding disorders industry forum thatpromotes communication among consumers, industry, healthcare providers, specialtypharmacies and the state.
Advocacy & policy - the hcc actively seeks the support of the California legislature for measures that will improve the quality of life of members in our community. Our efforts focus on supporting the current programs that exist, as well as evaluating changes to the current health system that may affect access and quality of treatment.in addition to serving the hcc board, the volunteer board of directors also serve the Hemophilia community in various capacities. Some of these include education, advocacy, pharmaceutical insight, relational development, and future building.
Who funds Hemophilia Council of California
Grants from foundations and other nonprofits
Personnel at Hemophilia Council of California
| Name | Title | Compensation | Date of data |
|---|
| Lynne Kinst | Executive Director | $93,079 | 2024-12-16 |
| Andrea Palladino | Communications and Programs Manager | | 2024-12-16 |
| Stephanie Dansker | Secretary | $0 | 2024-12-16 |
| Lauren D. Hay | President | $0 | 2024-12-16 |
| Oscar Horta | Past Treasurer | $0 | 2023-12-31 |
| ...and 13 more key personnel |
Financials for Hemophilia Council of California
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $320,099 | $8,879 | 3505.1% |
| Program services | $7,500 | $238,735 | -96.9% |
| Investment income and dividends | $5,553 | $8,740 | -36.5% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $333,152 | $256,354 | 30% |
Organizations like Hemophilia Council of California
| Organization | Type | Location | Revenue |
|---|
| Virginia Hemophilia Foundation | 501(c)(3) | Richmond, VA | $512,482 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
| Pacific Northwest Bleeding Disorders | 501(c)(3) | Corvallis, OR | $603,450 |
| Gateway Hemophilia Association | 501(c)(3) | Saint Louis, MO | $374,624 |
| DSNetwork | 501(c)(3) | Tempe, AZ | $263,264 |
| Sickle Cell Disease Association of Illinois | 501(c)(3) | Chicago, IL | $299,918 |
| The Northern Ohio Hemophilia Foundation | 501(c)(3) | Cleveland, OH | $904,148 |
| Hemophilia Foundation of Minnesota / Dakotas | 501(c)(3) | Mendota Heights, MN | $401,487 |
| South Central Pennsylvania Sickle Cell Council | 501(c)(3) | Harrisburg, PA | $122,589 |
| Down Syndrome Association of Northern Virginia | 501(c)(3) | Oakton, VA | $249,523 |
Data update history
August 10, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 25, 2024
Updated personnel
Identified 4 new personnel
December 4, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPartially liquidatedPeer-to-peer fundraisingState / local levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 717 K St 501
- Sacramento, CA 95814
- Metro area
- Sacramento-Roseville-Folsom, CA
- County
- Sacramento County, CA
- Website URL
- hemophiliaca.org/Â
- Phone
- (916) 572-7771
IRS details
- EIN
- 68-0182998
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1989
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 073034
- FTB Entity ID
- 1641149
- AB 488 data last updated ("as-of") date
- 2025-01-15
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