Program areas at Hereditary Disease Foundation
The Hereditary Disease Foundation supports a collaborative approach to scientific discovery. We invest in research by providing senior scientists with grants, including our new million-dollar transformative research awards, which began in 2023, and funding the work of early career scientists through postdoctoral fellowships. We organize scientific conferences enabling experts in hd to share their latest discoveries, explore cutting-edge technologies, and form collaborations. We highlight for the public notable work of scientists through our webinars.though the years the research funded by the hdf has been the catalyst for research that isolated the gene that causes huntington's Disease. (see continuation on schedule o)this finding led to the development of a genetic test for hd and launching modern research efforts.the hdf advances paradigm-changing huntington's research that directly impacts other neurodegenerative diseases like als, parkinson's and alzheimer's. We champion collaborative science through small think tank workshops, international conferences and webinars. We engage and retain the brightest minds in research by funding and mentoring early-career scientists. Hdf-funded researchers have made significant strides in applying advanced techniques such as artificial intelligence (ai), crispr and brain mapping, leading to tremendous promise for potential treatments.the Hereditary Disease Foundation supports research through several funding opportunities. Hdf research grants: one-year grants provide senior researchers with seed funding to enable them to collect the preliminary data needed to obtain major, long-term funding from other organizations, including nih. Hdf postdoctoral fellowships: two-year fellowships fund the work of early-career scientists. These fellowships are intended to encourage and cultivate interest in huntington's Disease research. Transformative research awards: these million-dollar research awards, hdf's largest grants, fund collaborative research teams to create innovative ways to study new pathogenic Disease mechanisms and treatment modalities in huntington's Disease.
Grants made by Hereditary Disease Foundation
Who funds Hereditary Disease Foundation
Grants from foundations and other nonprofits
Personnel at Hereditary Disease Foundation
Name | Title | Compensation | Date of data |
---|
Meghan Donaldson | Chief Executive Officer | $110,000 | 2024-10-14 |
Travis J. Carey | Chief Financial Officer | $11,516 | 2023-06-27 |
Julie Porter | Director of Administration | $103,600 | 2023-06-27 |
Sarah Hernandez | Director of Research Programs | | 2023-06-27 |
Nancy S. Wexler | Director / President | $0 | 2023-06-27 |
...and 7 more key personnel |
Financials for Hereditary Disease Foundation
Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
---|
Total grants, contributions, etc. | $2,087,245 | $4,399,874 | -52.6% |
Program services | $0 | $0 | - |
Investment income and dividends | $373,677 | $270,807 | 38% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $114,523 | $-184,714 | 162% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $3,396 | $36,719 | -90.8% |
Total revenues | $2,578,841 | $4,522,686 | -43% |
Organizations like Hereditary Disease Foundation
Organization | Type | Location | Revenue |
---|
Charcot-Marie-Tooth Association (CMTA) | 501(c)(3) | Glenolden, PA | $5,761,508 |
Foundation for Prader Willi Research (FPWR) | 501(c)(3) | Covina, CA | $6,535,580 |
Fore Batten Foundation | 501(c)(3) | Chapel Hill, NC | $1,452,603 |
Foundation for Angelman Syndrome Therapeutics | 501(c)(3) | Austin, TX | $6,525,815 |
United Cerebral Palsy of Middle Tennessee | 501(c)(3) | Nashville, TN | $1,396,807 |
Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
Daughters Against Alzheimer's | 501(c)(3) | Atlanta, GA | $1,136,478 |
Global Smile Foundation | 501(c)(3) | Westwood, MA | $1,426,339 |
Down Syndrome Organization of Southern Nevada | 501(c)(3) | Las Vegas, NV | $786,867 |
Global Foundation for Peroxisomal Disorders | 501(c)(3) | Tulsa, OK | $815,854 |
Data update history
December 3, 2024
Posted financials
Added Form 990 for fiscal year 2021
November 27, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyEndowed supportGala fundraisersTax deductible donationsAccepts online donations
General information
- Address
- 601 W 168th St 54
- New York, NY 10032
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- hdfoundation.org/Â
- Phone
- (212) 981-2121
IRS details
- EIN
- 23-7376197
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1968
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Not Operate or Solicit for Charitable Purposes
- Charity Registration status
- Delinquent
- FTB status revoked
- Not revoked
- AG Registration Number
- 015979
- FTB Entity ID
- 0711794
- AB 488 data last updated ("as-of") date
- 2024-12-31
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