EIN 23-7376197

Hereditary Disease Foundation

IRS 501(c) type
501(c)(3)
Num. employees
4
Year formed
1968
Most recent tax filings
2023-12-01
Description
The purpose of the Foundation is to support and fund scientific research seeking to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, in particular, huntington's Disease.
Total revenues
$2,578,841
2023
Total expenses
$4,738,635
2023
Total assets
$18,234,308
2023
Num. employees
4
2023

Program areas at Hereditary Disease Foundation

The Hereditary Disease Foundation supports a collaborative approach to scientific discovery. We invest in research by providing senior scientists with grants, including our new million-dollar transformative research awards, which began in 2023, and funding the work of early career scientists through postdoctoral fellowships. We organize scientific conferences enabling experts in hd to share their latest discoveries, explore cutting-edge technologies, and form collaborations. We highlight for the public notable work of scientists through our webinars.though the years the research funded by the hdf has been the catalyst for research that isolated the gene that causes huntington's Disease. (see continuation on schedule o)this finding led to the development of a genetic test for hd and launching modern research efforts.the hdf advances paradigm-changing huntington's research that directly impacts other neurodegenerative diseases like als, parkinson's and alzheimer's. We champion collaborative science through small think tank workshops, international conferences and webinars. We engage and retain the brightest minds in research by funding and mentoring early-career scientists. Hdf-funded researchers have made significant strides in applying advanced techniques such as artificial intelligence (ai), crispr and brain mapping, leading to tremendous promise for potential treatments.the Hereditary Disease Foundation supports research through several funding opportunities. Hdf research grants: one-year grants provide senior researchers with seed funding to enable them to collect the preliminary data needed to obtain major, long-term funding from other organizations, including nih. Hdf postdoctoral fellowships: two-year fellowships fund the work of early-career scientists. These fellowships are intended to encourage and cultivate interest in huntington's Disease research. Transformative research awards: these million-dollar research awards, hdf's largest grants, fund collaborative research teams to create innovative ways to study new pathogenic Disease mechanisms and treatment modalities in huntington's Disease.

Grants made by Hereditary Disease Foundation

GranteeGrant descriptionAmount
Massachusetts Institute of Technology (MIT)Scientific Research$185,828
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityScientific Research$177,837
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityScientific Research$135,320
...and 2 more grants made

Who funds Hereditary Disease Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,006,950
Mr and MRS Robert C Baker Family FoundationTo Further Donees Exempt Purpose$250,000
The Fox Family FoundationGeneral Fund$90,000
...and 19 more grants received totalling $1,667,674

Personnel at Hereditary Disease Foundation

NameTitleCompensation
Meghan DonaldsonChief Executive Officer$110,000
Travis J. CareyChief Financial Officer$11,516
Julie PorterDirector of Administration$103,600
Sarah HernandezDirector of Research Programs
Nancy S. WexlerDirector / President$0
...and 7 more key personnel

Financials for Hereditary Disease Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$2,087,245
Program services$0
Investment income and dividends$373,677
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$114,523
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$3,396
Total revenues$2,578,841

Form 990s for Hereditary Disease Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-15990View PDF
2022-122023-11-15990View PDF
2021-122024-10-14990View PDF
2020-122021-12-23990View PDF
2019-122021-02-26990View PDF
...and 10 more Form 990s
Data update history
December 3, 2024
Posted financials
Added Form 990 for fiscal year 2021
November 27, 2024
Used new vendors
Identified 1 new vendor, including
November 26, 2024
Received grants
Identified 1 new grant, including a grant for $5,000 from Keith and Mary Kay Mccaw Family Found
August 25, 2024
Received grants
Identified 10 new grant, including a grant for $90,000 from The Fox Family Foundation
May 17, 2024
Received grants
Identified 4 new grant, including a grant for $40,000 from Peter Solomon Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyEndowed supportGala fundraisersTax deductible donationsAccepts online donations
General information
Address
601 W 168th St 54
New York, NY 10032
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
hdfoundation.org/ 
Phone
(212) 981-2121
IRS details
EIN
23-7376197
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1968
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Not Operate or Solicit for Charitable Purposes
Charity Registration status
Delinquent
FTB status revoked
Not revoked
AG Registration Number
015979
FTB Entity ID
0711794
AB 488 data last updated ("as-of") date
2024-12-31
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