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EIN 90-0658125

Huntington's Disease Society of America Group

IRS 501(c) type
501(c)(3)
Num. employees
0
City
New York
State
New York
Year formed
1986
Most recent tax filings
2023-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
Huntington's Disease Society of America Group is a health and welfare organization with a mission to improve the lives of people and families living with Huntington's Disease. The group provides community outreach by organizing workshops, seminars, and symposiums in collaboration with its network of chapter affiliates and branches throughout the United States. It also offers education through publishing and distributing newsletters, brochures, and science updates to spread awareness about the disease.
Related structure
Huntington's Disease Society of America Group is child organization, under the parent exemption from Huntington's Disease Society of America (HDSA).
Total revenues
$3,252,082
2023
Total expenses
$3,044,483
2023
Total assets
$890,427
2023
Num. employees
0
2023

Program areas at Huntington's Disease Society of America Group

Patient and family services - provides counseling and referral services to patients with Huntington's Disease and their families.
Education - provides information and education through publication and distribution of newsletters, brochures and science updates.
Community outreach - provides workshops, seminars, and symposiums on Huntington's Disease through a network of chapter affiliates and branches throughout the united states.

Personnel at Huntington's Disease Society of America Group

NameTitleCompensation
Arik JohnsonInterim Chief Executive Officer$0
Rosemary ColuccioChief Operating Officer$0
Jamison SkalaChief Development Officer$0
Rebecca ChanDirector of Finance$0
Christopher CosentinoDirector of Marketing and Comm. / Director , Marketing and Communications$0
...and 20 more key personnel

Financials for Huntington's Disease Society of America Group

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,222,635
Program services$0
Investment income and dividends$28
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$29,419
Total revenues$3,252,082

Form 990s for Huntington's Disease Society of America Group

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-12990View PDF
2022-122023-05-16990View PDF
2021-122022-09-12990View PDF
2020-122021-07-20990View PDF
2019-122020-09-10990View PDF
...and 10 more Form 990s
Data update history
January 3, 2025
Updated personnel
Identified 1 new personnel
October 13, 2024
Updated personnel
Identified 5 new personnel
August 26, 2024
Posted financials
Added Form 990 for fiscal year 2021
July 20, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 3, 2023
Updated personnel
Identified 8 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
505 Eighth Ave Suite 1402
New York, NY 10018
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
hdsa.org/ 
Phone
(212) 242-1968
IRS details
EIN
90-0658125
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1986
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Child within group exemption
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
CT0211225
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-12-31
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