Program areas at Huntington's Disease Youth Organization of America
Young adult congress event: international young adult event for support and education.
Hdyo uk grant support: hdyo of America supported our sister Organization, also known as hdyo, registered as a charity under the united kingdom charity comission. Our grants provided funds for the creation and sharing of joint resources including a website, brochures, educational programs, and much more. Our sister Organization works insync with hdyo-america to combine our efforts to provide the best support possible for all young people around the world impacted by hd.
Research video series: young people need to be informed about clinical research and trials in an easy-to-understand format. We've partnered with hdbuzz to take their articles and create 2 minute long videos that break down the articles for young people to become their best advocates.
Who funds Huntington's Disease Youth Organization of America
Grants from foundations and other nonprofits
Personnel at Huntington's Disease Youth Organization of America
| Name | Title | Compensation | Date of data |
|---|
| Jenna Heilman | Chairperson | $100,000 | 2023-11-13 |
| Rebecca Mason | Research Manager | | 2023-01-20 |
| Jarrod Jay Strydom | Treasurer | $0 | 2023-01-20 |
| Trey Randall | Secretary | $0 | 2023-01-20 |
| Hayley Hubberstey | Chairperson | $0 | 2022-12-31 |
Financials for Huntington's Disease Youth Organization of America
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $430,447 | $220,607 | 95.1% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $-42 | -100% |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $430,447 | $220,565 | 95.2% |
Organizations like Huntington's Disease Youth Organization of America
| Organization | Type | Location | Revenue |
|---|
| Myhre Syndrome Foundation | 501(c)(3) | Richardson, TX | $853,869 |
| Down Syndrome Association of Pittsburgh | 501(c)(3) | Pittsburgh, PA | $378,995 |
| Down Syndrome Society of Wichita | 501(c)(3) | Wichita, KS | $223,926 |
| Hemophilia Council of California | 501(c)(3) | Sacramento, CA | $333,152 |
| Massachusetts Sickle Cell Association | 501(c)(3) | Boston, MA | $402,449 |
| Down Syndrome Alabama | 501(c)(3) | Hoover, AL | $178,203 |
| Oklahoma Hemophilia Foundation | 501(c)(3) | Tulsa, OK | $172,884 |
| Sickle Cell Anemia Foundation of Oregon | 501(c)(3) | Portland, OR | $338,188 |
| Lowe Syndrome Association | 501(c)(3) | Cincinnati, OH | $141,550 |
| Down Syndrome Association of Ne Indiana | 501(c)(3) | Fort Wayne, IN | $201,394 |
Data update history
October 21, 2024
Received grants
Identified 1 new grant, including a grant for $10,000 from Chdi Foundation January 21, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 21, 2024
Updated personnel
Identified 2 new personnel
August 6, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedOperates internationallyState / local levelTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- PO Box 530276
- Livonia, MI 48152
- Metro area
- Detroit-Warren-Dearborn, MI
- County
- Wayne County, MI
- Website URL
- hdyo.org/Â
- Phone
- (952) 270-5428
IRS details
- EIN
- 45-4955538
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2013
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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