EIN 46-4162735

Hypersomnia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
4
State
Year formed
2014
Most recent tax filings
2023-12-01
NTEE code, primary
Description
The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders. They provide high-quality, timely information to people with hypersomnias, their supporters and health care providers, as well as increasing awareness and knowledge of hypersomnias in medical and educational communities in order to reduce time to diagnosis. Their programs include further Hypersomnia awareness, education and research.
Total revenues
$917,170
2023
Total expenses
$734,484
2023
Total assets
$1,136,103
2023
Num. employees
4
2023

Program areas at Hypersomnia Foundation

Further Hypersomnia awareness, education and research

Grants made by Hypersomnia Foundation

GranteeAmount
American Academy of Sleep Medicine Foundation$62,500

Who funds Hypersomnia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Robertson Powell FoundationGeneral & Unrestricted$145,000
Schwab Charitable FundEducation$75,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$15,700
...and 4 more grants received

Personnel at Hypersomnia Foundation

NameTitleCompensation
Claire Wylds-WrightChief Executive Officer
Lindsay JesteadtChief Operating Officer$32,202
Amy Haraden DesmaraisDesmarais - Treasurer and Chief Financial Officer$27,900
Ed BeganExecutive Director
Stephanie WellsOperations Manager
...and 4 more key personnel

Financials for Hypersomnia Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$813,408
Program services$75,679
Investment income and dividends$28,083
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$917,170

Form 990s for Hypersomnia Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-06-28990View PDF
2022-122023-07-19990View PDF
2021-122022-07-01990View PDF
2021-122022-05-10990View PDF
2020-122021-05-25990View PDF
...and 6 more Form 990s
Data update history
August 28, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 27, 2024
Updated personnel
Identified 2 new personnel
July 9, 2024
Received grants
Identified 2 new grant, including a grant for $145,000 from The Robertson Powell Foundation
April 2, 2024
Updated personnel
Identified 5 new personnel
January 2, 2024
Received grants
Identified 2 new grant, including a grant for $8,650 from GlobalGiving
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthEducationMedical disciplines
Characteristics
Conducts researchNational levelTax deductible donationsAccepts online donations
General information
Address
4514 Chamblee Dunwoody Rd 229
Atlanta, GA 30338
Metro area
Atlanta-Sandy Springs-Alpharetta, GA
County
DeKalb County, GA
Website URL
hypersomniafoundation.org/ 
Phone
(404) 301-1924
IRS details
EIN
46-4162735
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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