Program areas at I Am Als
Community supportthe I Am Als community support team provides direct emotional support services, support groups, peer matching, and information and resources to individuals living with Als, loved ones, and caregivers.
Community organizing and communications I Am Als communicates with and mobilizes the Als community in self-organized teams and as individuals to catalyze policy change and research progress to end Als. This includes efforts aimed at public awareness; policy outcomes; impact on trials and treatment access; and more.
Government affairs, policy, and researchi Am Als also utilizes this community movement and expertise to influence changes to federal funding, and transform research systems, institutional policy, and regulatory processes with the goals of increasing research funding; improving patient access to treatment; and speeding the development and access of treatments and cures for people living with Als.
Other programs
Grants made by I Am Als
| Grantee | Grant description | Grant year | Amount |
|---|
| North East Als Consortium | Two-Day Program Hosted By Neals Dedicated To Eduating Patients and Families on Clinical Research and Highlighting Opportunities for Them To Have A Greater Role in It. | 2019-12 | $10,000 |
Who funds I Am Als
Grants from foundations and other nonprofits
Personnel at I Am Als
| Name | Title | Compensation | Date of data |
|---|
| Laura Pazze Dalle | Chief Executive Officer | $192,023 | 2022-12-31 |
| Suzanne Anthony | Chief Operating Officer / Chief Operations Officer | $146,813 | 2021-12-31 |
| Michael Lecker | Vice President of Organizing | $111,376 | 2023-12-20 |
| Aditi Narayan | Vice President of Community Support / Director of Community Support | $154,815 | 2022-12-31 |
| Theresa Garner | Communications and Organizing Director | $139,375 | 2021-12-31 |
| ...and 5 more key personnel |
Financials for I Am Als
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $1,609,370 | $3,338,131 | -51.8% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $1,004 | $162 | 519.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $2,224 | -100% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $21,252 | $4,847 | 338.5% |
| Miscellaneous revenues | $225 | $470 | -52.1% |
| Total revenues | $1,631,851 | $3,345,834 | -51.2% |
Organizations like I Am Als
| Organization | Type | Location | Revenue |
|---|
| Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
| Bone Health and Osteoporosis Foundation (OF) | 501(c)(3) | Arlington, VA | $2,807,901 |
| Jett Foundation | 501(c)(3) | Plymouth, MA | $3,528,313 |
| Davis Phinney Foundation | 501(c)(3) | Louisville, CO | $3,779,269 |
| Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $6,573,455 |
| The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
| The Als Association - Central & Southern Ohio Chapter | 501(c)(3) | Columbus, OH | $1,532,034 |
| Epilepsy Foundation of Michigan | 501(c)(3) | Southfield, MI | $1,296,554 |
| FSHD Society | 501(c)(3) | Randolph, MA | $4,455,414 |
| Myasthenia Gravis Foundation of America (MGFA) | 501(c)(3) | Westborough, MA | $3,555,325 |
Data update history
January 20, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 20, 2024
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingNational levelEndowed supportCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
- Address
- 1200 Pennsylvania Ave NW 14135
- Washington, DC 20004
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- District of Columbia, DC
- Website URL
- iamals.org/Â
- Phone
- (202) 505-1256
IRS details
- EIN
- 83-2016277
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2018
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0266580
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2024-10-16
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