Program areas at ICHOM
The core of ICHOM's work is the development of ICHOM Sets of Patient-Centered Outcome Measures. ICHOM convenes global patient, clinical, measurement, and research leaders to define outcomes important to patients and develop consensus-based measure Sets. ICHOM facilitates an eight to twelve-month long process to define each Set of outcomes. In 2023 ICHOM launched the ICHOM Pediatric and Adult Epilepsy Set of Patient-Centered Outcome Measures which allows for tracking patient-centered outcomes in people living with epilepsy from the age of 1 month onwards, as well as started the ground-breaking development of an Obesity Set, due to be completed in Q2 next year. Another continuation in ICHOM's work this year has been updating previously published Sets, necessary to keep the Sets relevant and functional in clinical space. In 2023 started the review of the Oncology Sets, due to be completed by 2023.
ICHOM continues to be the leading organization in terms of convening multi-national learning communities to demonstrate impact of standardized outcome measurement, this year growing their online network to nearly 30,000 individuals. In 2023, ICHOM held their second largest in-person value-based healthcare conference convening 600 individuals from 46 countries, participating in seminars and workshops across three days. ICHOM has also continued efforts to develop an updated and expanded library of ICHOM case studies, with five either completed or in progress this year.
ICHOM is committed to driving the use of these resources to scale up patient-centered measurement and care transformation. Once developed, ICHOM and its partners invest in presenting these public good resources as open-access tools, in the form of PDF Implementation Guides and open-access scientific publications. In order to drive the adoption of these measures, ICHOM also offers enhanced implementation support, including IT-Ready measures mapped for interoperability standards, coaching, accreditation, and learning models. In 2023, ICHOM announced that they now support interoperability with our Sets of Patient-Centered Outcome Measures through FHIR HL7. This is a key development as they seek to make Sets as usable as possible in healthcare systems worldwide. FHIR, (Fast Healthcare Interoperability Resources) and HL7 interoperability standards ensure data from disparate sources is compatible and usable, and will make the collection and analysis of ICHOM Set data much easier and faster. This year ICHOM has officially published an Implementation Guide in the oncology space, Breast Cancer. ICHOM also continues to provide availing implementation support, training and coaching, and accredits organizations that are providing exemplary care.