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EIN 27-0950477

International Foundation For CDKL5 Research (IFCR)

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Wadsworth
State
Ohio
Year formed
2009
Most recent tax filings
2023-12-01
NTEE code, primary
H90: Medical Specialty Research
Description
To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
Total revenues
$639,182
2023
Total expenses
$414,598
2023
Total assets
$761,142
2023
Num. employees
0
2023

Program areas at IFCR

A number of fundraisers were held in 2023. In addition, contributions were received from numerous individuals, corporations, and foundations. As a result, grants totaling $197,884 were made during 2023 to fund research that will lead to a cure for this very debilitating disease in the near future. The Organizations goals include aggressive research, studies to improve the quality of life for children with CDKL5, and testing of compounds to identify neurologic modifiers.

Grants made by IFCR

GranteeGrant descriptionAmount
Children's National Hospital72884$72,884
The Children's Hospital of Philadelphia (CHOP)Research$50,000
Vanderbilt University Medical Center35000$35,000
...and 2 more grants made

Who funds International Foundation For CDKL5 Research (IFCR)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$22,254
Community Foundation of Middlesex CountyResearch$15,000
Schwab Charitable FundPublic, Societal Benefit$11,500
...and 4 more grants received

Personnel at IFCR

NameTitleCompensation
Karen UtleyPresident$0
Paul MillerSecretary$0
Amanda JakshaTreasurer$0
Rick UppVice President$0
Megan StrokSecretary$0
...and 1 more key personnel

Financials for IFCR

RevenuesFYE 12/2023
Total grants, contributions, etc.$630,788
Program services$0
Investment income and dividends$3,044
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$5,350
Total revenues$639,182

Form 990s for IFCR

Fiscal year endingDate received by IRSFormPDF link
2023-122024-10-23990View PDF
2022-122023-11-10990View PDF
2021-122022-11-09990View PDF
2020-122021-11-08990View PDF
2019-122021-02-26990View PDF
...and 9 more Form 990s
Data update history
December 10, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 25, 2024
Received grants
Identified 3 new grant, including a grant for $22,254 from American Online Giving Foundation
January 21, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 26, 2023
Received grants
Identified 1 new grant, including a grant for $2,500 from JP Morgan Chase Foundation
September 27, 2023
Received grants
Identified 1 new grant, including a grant for $2,000 from The Warburg Pincus Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 926
Wadsworth, OH 44282
County
Medina County, OH
Website URL
cdkl5.com/ 
Phone
(979) 265-3411
IRS details
EIN
27-0950477
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
CT0286560
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2024-12-18
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