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EIN 26-1079735

International PNH Interest Group

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Altamonte Springs
State
Florida
Year formed
2008
Most recent tax filings
2023-12-01
NTEE code, primary
T20: Private Foundations
Description
International PNH Interest Group is dedicated to advancing optimal treatment and care for individuals living with paroxysmal nocturnal hemoglobinuria (PNH) and related conditions. It promotes global public health by enhancing professional knowledge about PNH, offering instruction, information, and training to healthcare providers worldwide. As the only global professional society focused specifically on PNH and its treatment, IPIG also supports research on effective treatment options and improved patient access to approved therapies.
Total revenues
$358,957
2023
Total expenses
$393,553
2023
Total assets
$5,901,776
2023
Num. employees
0
2023

Program areas at International PNH Interest Group

Maintenance on website to share information about PNH treatment and other resources with care professionals and to encourage physicians researchers laboratory s
Held annual meetingconferencescientific assembly at which its members gather to discuss diagnosis treatment and managmenet of PNH disorder

Grants made by International PNH Interest Group

GranteeGrant descriptionAmount
American Society of Hematology (ASH)2 Abstract Achievement Awards$5,000

Personnel at International PNH Interest Group

NameTitleCompensation
Dawn McKnightExecutive Director$0
Heather HollowellAdministrative Manager

Financials for International PNH Interest Group

RevenuesFYE 12/2023
Total grants, contributions, etc.$215,095
Investment income and dividends$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Gross sales of inventory$0
Miscellaneous revenues$143,862
Total revenues$358,957

Form 990s for International PNH Interest Group

Fiscal year endingDate received by IRSFormPDF link
2023-122024-05-13990PFView PDF
2022-122023-07-26990PFView PDF
2021-122022-10-12990PFView PDF
2020-122021-09-15990PFView PDF
2019-122020-09-22990PRView PDF
...and 9 more Form 990s
Data update history
July 21, 2024
Updated personnel
Identified 4 new personnel
July 15, 2024
Posted financials
Added Form 990PF for fiscal year 2023
July 10, 2024
Used new vendors
Identified 1 new vendor, including
August 26, 2023
Posted financials
Added Form 990PF for fiscal year 2022
August 24, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsPrivate foundationsPrivate non-operating foundationsCharities
Issues
HealthPublic policy
Characteristics
Provides grantsConducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
222 S Westmonte Dr Ste 111
Altamonte Springs, FL 32714
Metro area
Orlando-Kissimmee-Sanford, FL
County
Seminole County, FL
Website URL
pnhinterestgroup.org/ 
Phone
(407) 774-7880
IRS details
EIN
26-1079735
Fiscal year end
December
Taxreturn type
Form 990-PF
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
T20: Private Foundations
NAICS code, primary
813211: Grantmaking Foundations
Parent/child status
Independent
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