| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Charley's Fund | DMD Clinic | 2022-12 | $100,000 |
| Team Joseph | Outreach | 2022-12 | $60,000 |
| Hope for Gus Foundation | Research | 2022-12 | $5,750 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Fidelity Investments Charitable Gift Fund | 2023-06 | For Grant Recipient's Exempt Purposes | $16,150 |
| Chris Brooke Muscular Dystrophy Foundation | 2023-12 | To Help Fund A Foundation That Donates To Various Muscular Dystrophy Organizations | $12,000 |
| The Stern Family Charitable Trust | 2022-12 | To Support the Mission of JB'S Keys To DMD Which Is To Support the Research, Advocacy, Clinics, and Quality of Life Experiences for Families Affected By DMD. | $10,000 |
| ...and 6 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Elizabeth W Harvey | President | $40,000 | 2023-07-26 |
| Stephen Woelfel | Treasurer | $0 | 2022-12-31 |
| Kelly Honohan | Clerk | $0 | 2022-12-31 |
| Mike Elkas | Finance Chairman | $0 | 2015-12-31 |
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $459,223 |
| Program services | $0 |
| Investment income and dividends | $7,932 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $4,854 |
| Net income from fundraising events | $-58,226 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $26,000 |
| Total revenues | $439,783 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-07-26 | 990 | View PDF |
| 2021-12 | 2022-09-06 | 990 | View PDF |
| 2020-12 | 2021-08-17 | 990 | View PDF |
| 2019-12 | 2020-10-21 | 990 | View PDF |
| 2018-12 | 2019-07-23 | 990 | View PDF |
| ...and 9 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Maryland Association for Parkinson Support | 501(c)(3) | Brooklandville, MD | $420,124 |
| Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
| Hereditary Neuropathy Foundation | 501(c)(3) | New York, NY | $1,259,879 |
| Fore Batten Foundation | 501(c)(3) | Chapel Hill, NC | $1,452,603 |
| Cure Tay-Sachs Foundation | 501(c)(3) | Phoenix, AZ | $448,202 |
| CDH International | 501(c)(3) | Wake Forest, NC | $213,512 |
| Down Syndrome Organization of Southern Nevada | 501(c)(3) | Las Vegas, NV | $786,867 |
| United Cerebral Palsy of Middle Tennessee | 501(c)(3) | Nashville, TN | $1,272,910 |
| Bright Faces | 501(c)(3) | Brambleton, VA | $370,020 |
| Global Foundation for Peroxisomal Disorders | 501(c)(3) | Tulsa, OK | $815,854 |
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