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EIN 82-5401904

Kabuki Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Northbrook
State
Illinois
Year formed
2018
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Kabuki Syndrome Foundation drives research efforts to treat or cure Kabuki Syndrome by fundraising, knowledge-sharing, and collaborating with researchers worldwide. The foundation hosts a medical conference that brings together leading Kabuki Syndrome researchers and affected individuals and their families. Additionally, the organization funds discovery grants to identify new therapeutic opportunities, disease-causing targets, and pathways.
Total revenues
$362,899
2022
Total expenses
$236,797
2022
Total assets
$482,449
2022
Num. employees
0
2022

Program areas at Kabuki Syndrome Foundation

The Foundation hosts a medical conference that brings together several of the leading Kabuki Syndrome researchers in the world, as well as many individuals with Kabuki Syndrome and their families.
The Foundation funds discovery grants aimed at identifying new therapeutic opportunities, disease-causingtargets, and pathways.

Who funds Kabuki Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Cingari Family FoundationGeneral$100,000
Schwab Charitable FundHealth$65,500
Rather Family FoundationGeneral Support$21,000
...and 4 more grants received

Personnel at Kabuki Syndrome Foundation

NameTitleCompensation
Jill Orum DunbarPresident$0

Financials for Kabuki Syndrome Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$357,929
Program services$4,970
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$362,899

Form 990s for Kabuki Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-14990View PDF
2020-122021-05-25990View PDF
2019-122020-09-25990View PDF
2018-122019-06-19990View PDF
Data update history
August 26, 2024
Received grants
Identified 3 new grant, including a grant for $100,000 from Cingari Family Foundation
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $10,000 from The Kikis Family Foundation
January 24, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Received grants
Identified 1 new grant, including a grant for $110,000 from Cingari Family Foundation
October 26, 2023
Received grants
Identified 1 new grant, including a grant for $3,000 from Dream Weaver Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 214
Northbrook, IL 60065
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Cook County, IL
Website URL
kabukisyndromefoundation.org/ 
Phone
(847) 226-8237
IRS details
EIN
82-5401904
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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