Program areas at KCNQ2 Cure Alliance
In collaboration with boston children's hospital the grant funded the acquisition and characterisation to an updated KCNQ2 registry and draft natural history study of over 100 international patients. Countries thus involved and expanded in the study include bulgaria, china, australia, canada, norway, spain, croatia, united kingdom and the united states. Additionally, the grant research leads at bch are preparing a report on the overall statistical impact of building out a registry backed with published articles detailing the impact the data has provided to assist with the creation of human cell lines, crispr work and additional input to translational therapies such as rna and other gene therapy approaches.
Grants made by KCNQ2 Cure Alliance
Who funds KCNQ2 Cure Alliance
Grants from foundations and other nonprofits
Personnel at KCNQ2 Cure Alliance
| Name | Title | Compensation | Date of data |
|---|
| Jim Johnson | President | $0 | 2024-08-13 |
| Scotty Sims | Secretary | $0 | 2023-12-31 |
| Caroline Lowey | Treasurer | $0 | 2023-12-31 |
| Sara James | Vice President | $0 | 2023-12-31 |
| Caroline Loewy | Past Treasurer | $0 | 2020-12-31 |
| ...and 1 more key personnel |
Financials for KCNQ2 Cure Alliance
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $290,960 | $115,903 | 151% |
| Program services | $7,767 | $56,500 | -86.3% |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $298,727 | $172,403 | 73.3% |
Organizations like KCNQ2 Cure Alliance
| Organization | Type | Location | Revenue |
|---|
| Standup For The Cure | 501(c)(3) | Cardiff By the Sea, CA | $199,486 |
| Cure Breast Cancer Foundation | 501(c)(3) | Clifton, NJ | $556,648 |
| Malignant Hyperthermia Association of the United States | 501(c)(3) | Sherburne, NY | $604,730 |
| Northwest Sarcoma Foundation | 501(c)(3) | Seattle, WA | $322,305 |
| Ohio Hematopoietic Transplant and Cellular Therapy Consortium | 501(c)(3) | Galena, OH | $99,377 |
| MS 4 MS | 501(c)(3) | Arnold, MD | $166,990 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
| Angel Fund | 501(c)(3) | Wakefield, MA | $928,586 |
| Rare Trait Hope Fund | 501(c)(3) | Belle Chasse, LA | $260,648 |
| Kennedy's Disease Association | 501(c)(3) | Coarsegold, CA | $454,537 |
Data update history
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $1,446 from AmazonSmile Foundation September 26, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 4, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 3700 Northfield Quebec St Unit 100
- Denver, CO 80207
- Metro area
- Denver-Aurora-Lakewood, CO
- County
- Denver County, CO
- Website URL
- kcnq2cure.orgÂ
- Phone
- (303) 887-9532
IRS details
- EIN
- 47-1810644
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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