Program areas at Kif1aorg
Research and development - kif1a.orKif1aorgrg powers collaborative and translational research to rapidly discover treatment for kand. Kif1a.orKif1aorgrg manages several programs to de-risk and accelerate therapeutic development, including the kif1a research network, direct research funding, and open-access tools for development, such as natural history data, disease models, and biomarkers.
Other programs - general, community and family support, conference attendance and koala travel reimbursement
Kand family and scientific engagement conference - kif1a.orKif1aorgrg hosted the 2023 kand family & scientific engagement conference in new york city, ny from august 3-6, 2023. These conferences bring together kif1a.orKif1aorgrg community members in one setting including patients, families, scientists, clinicians, biotech leaders, and supporters. The latest 2023 updates in research and therapeutic development were shared and patients and families shared their personal stories with kand. This 4 day conference also included research participation for 30 kand patients and families and doubled our inperson koala assessments.
Who funds Kif1aorg
Grants from foundations and other nonprofits
Personnel at Kif1aorg
| Name | Title | Compensation | Date of data |
|---|
| Dominique Lessard | Chief Science Officer | $41,727 | 2023-12-31 |
| Luke Rosen | Board Chair | $0 | 2023-12-31 |
| Michelle Tao | Director of Strategy | $0 | 2023-12-31 |
| Luke Rosen and Sally | Research Engagement Director | | 2023-03-22 |
| Angela Fuller | Interim Director | | 2023-03-22 |
| ...and 5 more key personnel |
Financials for Kif1aorg
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $206,859 | $557,413 | -62.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $22,611 | $4 | - |
| Total revenues | $229,470 | $557,417 | -58.8% |
Organizations like Kif1aorg
| Organization | Type | Location | Revenue |
|---|
| Hemophilia Alliance of Maine | 501(c)(3) | Brewer, ME | $189,131 |
| Down Syndrome Association of Atlanta | 501(c)(3) | Atlanta, GA | $229,907 |
| Ohio Sickle Cell Health Association | 501(c)(3) | Columbus, OH | $284,805 |
| CCD Smiles | 501(c)(3) | Orem, UT | $126,860 |
| Cpath Cerebral Palsy Awareness Transition Hope | 501(c)(3) | Austin, TX | $204,749 |
| Midwest Hemophilia Association | 501(c)(3) | Ozark, MO | $264,464 |
| Krueger Hat Trick | 501(c)(3) | Westminster, MD | $106,134 |
| Hemophilia Foundation of MD | 501(c)(3) | Baltimore, MD | $381,412 |
| Designer Genes of North Dakota | 501(c)(3) | Bismarck, ND | $152,335 |
| Hemophilia Foundation of Minnesota / Dakotas | 501(c)(3) | Mendota Heights, MN | $401,487 |
Data update history
May 25, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 20, 2024
Updated personnel
Identified 2 new personnel
December 31, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
- Address
- 1178 Broadway 3rd Floor 3535
- New York, NY 10001
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- kif1a.org/Â
- Phone
- (929) 630-5232
IRS details
- EIN
- 82-0714729
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2017
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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